Parent Action Committee Charter
This charter was developed by the Phelan-McDermid Syndrome Data Network (PMS_DN) Patient-Powered Research Network (PPRN), in partnership with the Phelan-McDermid Syndrome Foundation and their Parent Action Committee (PAC). The charter lays out the roles and responsibilities for members of the committee and the time commitment expected for patient-centered governance. Use this as guidance when developing a committee charter in your community.
PMS_DN formerly was a Network Partner of PCORnet®, the National Patient-Centered Clinical Research Network. PCORnet has been developed with funding from PCORI.
Study Outreach; Team Management
Patients and Public Stakeholders: