Presentation slides (session 1 of 4 of day 2 of 2) from the 2015 National Organization for Rare Disorders Rare Disease and Orphan Products Breakthrough Summit provide information on natural history of rare diseases and the potential of patient registries for rare disease PCOR. The presentation and resources at the end could be used by others interested in learning about how data sources could be optimized to support PCOR partnerships. View slides from the other sessions.
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