Session 5: The Natural History of Disease - The Trump Card?

Presentation slides (session 1 of 4 of day 2 of 2) from the 2015 National Organization for Rare Disorders Rare Disease and Orphan Products Breakthrough Summit provide information on natural history of rare diseases and the potential of patient registries for rare disease PCOR. The presentation and resources at the end could be used by others interested in learning about how data sources could be optimized to support PCOR partnerships. View slides from the other sessions.

Disclaimer: This tool was developed and provided by a third party. Opinions and information in this content are those of the third party and do not necessarily represent the views of PCORI. Accordingly, PCORI cannot make any guarantees with respect to the accuracy or reliability of the information and data in this content.