Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 201 - 225 of 415 results
Engagement Assessment Tool
This engagement assessment tool developed by the PCORNet ® Engagement Committee describes principles to consider throughout your shared research process. Organizations can use these principles to help nurture essential partnerships…
Terms Glossary
This document was developed by the PCORnet ® Engagement Committee and contains PCORnet-specific definitions. This document can help researchers discuss engagement in the clinical research space. The Engagement Committee was…
Elements for Effective Engagement
This document, developed by the PCORnet ® Engagement Committee, outlines key elements for stakeholder’s engagement in research. The elements included were identified through a review of the literature and gathering…
Clinical Engagement Value Proposition
This resource, developed by the PCORnet ® Engagement Committee, provides a clear proposition for the value of incorporating research into daily medical practice that had not previously been well described…
Writing Team Orientation Packet
The PARTNERS Patient-Powered Research Network (PPRN) Writing Team Orientation Packet provides team members an overview of their roles and responsibilities and the importance of their participation in health-literate communication. The…
TransFORWARD Webinar: The PRIDE Study
TransForward’s primary goal is to create a statewide Transgender-Powered Research Learning Collaborative Network to conduct research on transgender health issues across Texas. There are significant gaps in research to guide…
Patient Engagement in Cancer Research: Environmental Scan Report
The Hutchinson Institute for Cancer Outcomes Research at the Fred Hutchinson Cancer Research Center conducted an environmental scan to review existing methods, models, activities, best practices, and opportunities for patient…
HICOR Handout
This educational handout produced by HICOR describes patient engagement, HICOR, and HICOR research areas. Other research teams could use this document as an example of introductory materials as they recruit…
Prioritized Health Research Agenda: Improving Health by Engaging Refugees in Denver
This prioritized health research agenda, developed through the University of Colorado Denver, provides a guide to future collaborative research between research teams, advisory boards, and broader refugee communities. The identified…
Three Breakout Sessions: Public Involvement in Dementia Care Research
The University of Texas San Antonio held a symposium in collaboration with their annual geriatrics conference. Specific breakout sessions were designed for PCORI participants and facilitated by members of the…
Research Governance Committee: Principles, Policies, Procedures Document
The Center for Community Health Education Research and Service, Inc. has drafted a document that provides an example of how a partnership can govern themselves based on established principles of…
Building Successful Collaborations with Communities-A Guidebook for Researchers, Agency and Organization Staff
This guidebook created by Comagine Health is a compilation of recommendations from community leaders, community liaisons, and community engaged researchers to researchers, agency and organization staff to empower their collaborators…
Youth Focus Group Discussion Guide
The Urban Institute’s project is focused on creating better relationships between communities and researchers. To accomplish this, they held multiple focus groups and interviews with youth in their community as…
Survey Design for Community Members
Over two decades of research underscore the importance of initial pathways to care for youth and young adults (Y/YA) with nascent serious mental illness, with negative pathways having been found…
Family Training Module: Part 1
The University of California San Francisco study team co-created a three-part family training module with their Community Advisory Board and community agencies. The module consists of a facilitation guide and…
Family Training Module: Part 2
The University of California San Francisco study team co-created a three-part family training module with their Community Advisory Board and community agencies. The module consists of a facilitation guide and…
Strengthening Diversity in Research Partnerships: Knowledge to Action Guide
This Knowledge to Action Guide from the Institute for Patient and Family-Centered Care provides guidance and best practices for creating partnerships with typically underrepresented patient, family, and community partners in…
Summary: UPMC Conference on Accelerating Stakeholder-Driven Patient-Centered Outcomes Research andComparative Effectiveness Research in a Learning Health System
This conference summary created by the UPMC Center for High-Value Health Care and the UPMC Wolf Center summarizes the activities from their one-day conference. The meeting aimed to create an…
Building Successful Collaborations with Communities-A Guidebook for Community Organizations, Leaders and Members
This guidebook created by Comagine Health is a compilation of recommendations for community leaders, community liaisons, and community engaged researchers to empower their collaborators as equal partners in research. It…
Research Interviews for Community Members
More than two decades of research underscore the importance of initial pathways to care for youth and young adults (Y/YA) with nascent serious mental illness, with negative pathways having been…
Four Corners TGNC Research Advisory Network Focus Group Discussion Guide
Howard Brown’s project focuses on creating a transgender and gender non-conforming (TGNC) Research Advisory Network (The Network) in order to both support the development of patient-centered TGNC health research projects…
Step-by-Step Guide for the Creation of Condition-Specific Rare Disease Information Sheets
This guide shares a step-by-step process for developing engaging informational materials on rare diseases that could be shared virtually or in hard copy to a variety of audiences as background…
Learning Health System Transformation: A strategic roadmap for guiding stakeholder-driven health system research
UPMC Center for High Value Health Care's strategic roadmap was created with the aim of promoting stakeholder-driven PCOR/CER in health systems in the near term and over the transformation to…
Patient and Stakeholder Partners Engagement Toolkit for Rare Genetic Disorders
This toolkit provides guidance to groups focused on rare diseases who are looking to develop or improve upon engagement in research efforts.
Partner Interview Protocol
The Urban Institute’s project is focused on creating better relationships between communities and researchers. To accomplish this, they held multiple focus groups and interviews with youth in their community as…
