Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 51 - 75 of 415 results
PCORnet Engagement Coordinating Center Show & Share Webinar Series: CAPriCORN
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the CAPriCORN Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: ADVANCE
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the ADVANCE Clinical Research…
Digital Strategies for Returning Value to Research Participants Issue Brief
This issue brief offers a snapshot of the full Digital Strategies for Returning Value to Research Participants report (available here), which examines principles for returning value to research participants and…
Case Study Examples: Engaging in PCOR
This Case Study Activity was developed by Pennsylvania State University Hershey Medical Center and used during a community health worker training. This activity provides case studies for participants on patient-centered…
Spanish Infographic: What is Research?
An infographic developed by Pennsylvania State University Hershey Medical Center providing a high-level overview of what research is. This infographic is intended for (CHWs) in patient-centered outcomes research. This infographic…
Infographic: What is Research?
An infographic developed by Pennsylvania State University Hershey Medical Center providing a high-level overview of what research is. This infographic is intended for (CHWs) in patient-centered outcomes research. This infographic…
Infographic: Value of PCOR
An infographic developed by Pennsylvania State University Hershey Medical Center providing a high-level overview of benefits of engaging Community Health Workers (CHWs) in patient-centered outcomes research. The infographic is intended…
African Immigrant Health Research Consortium Partnership Agreement
The purpose of this partnership agreement is to establish the African Immigrant Health Research Consortium. The goal of this project is to bring partners together to foster research collaborations and…
Pharmacy Innovation Network Tools for Partnered Research Engagement Kit
The Research Engagement Kit has resources that can be used by patients, community pharmacists, and researchers. It includes items to help researchers share their study information with pharmacists and patients…
RaRE Disease Research and Engagement Stakeholder Engagement Plan
The purpose of this Stakeholder Engagement Plan is to identify how The RaRE Disease Research project team will conduct stakeholder engagement to hold a successful convening that ensures the meaningful…
Digital Strategies for Returning Value to Research Participants Report
This report examines principles for returning value to research participants and provides examples of digitally based engagement strategies sourced from literature scans and case study interviews from the PCORI-funded Patient/Participant-Driven…
Strategies for Improving Patient Representativeness in Research Governance Report
This report examines the significance of and strategies for improving patient representativeness in research governance and provides examples of governance recruitment and retention practices sourced from literature scans and case…
Patient Partner Position Description by REACHnet
In this document, the Research Action for Health Network (REACHnet) Clinical Research Network (CRN) describes the roles and scope of a patient- partner consultant. This resource can be used by…
Patient Engagement Officer Description by the Greater Plains Collaborative
In this document, the Greater Plains Collaborative (GPC) Clinical Research Network (CRN) describes the role of a Patient Engagement Officer (PEO). This resource can be used by researchers and other…
Patient Advisors Description by the Greater Plains Collaborative
The Greater Plains Collaborative (GPC) Clinical Research Network (CRN) describes the role of a Patient Advisors Council (PAC) patient or caregiver member in this template. This resource can be used…
CAPriCORN Patient and Community Advisory Committee (PCAC) Consultation Abstract Form
The Chicago Area Patient-Centered Outcomes Research Network (CAPriCORN) Clinical Research Network (CRN) created this consultation abstract form for researchers to submit their study plans to the CAPriCORN Patient and Community…
OCHIN-ADVANCE Engagement Values, Functions, and Metrics
The Accelerating Data Value Across a National Community Health Center (ADVANCE) Clinical Research Network (CRN) outlined its priorities and metrics for engagement across patient and caregiver groups in this snapshot…
Agenda Template by REACHnet
This agenda template was developed by the Research Action for Health Network (REACHnet). It was created with patient stakeholders’ input for use during study meetings that include stakeholders, such as…
Value Classroom
This virtual Value Classroom created by the National Health Council features tools and resources for understanding value in health care and value assessment. Resources are intended to help patients and…
Increasing Patient-Community Capacity to Engage on Quality of Health Care Educational Series
This six-module online educational series developed by the National Health Council addresses why quality is important in the current healthcare environment and how patients and patient organizations can be strong…
Community Engagement Studio Toolkit
The toolkit builds on the Community Engagement Studio (CES) model and toolkit developed by the Meharry-Vanderbilt Community Engaged Research Core (CERC). The Maternal Mental Health Research Collaborative (MMHRC) tailored the…
HICOR Patient Engagement Plan
The Hutchinson Institute for Cancer Outcomes Research (HICOR) Patient Engagement Plan 2020 was created to develop a patient engagement plan which effectively integrates patient partners in research aimed at improving…
Pediatric Dermatology Research Alliance (PeDRA) Webinars for Researchers, Clinicians, and Patients
This website provides access to archived webinars conducted by the Pediatric Dermatology Research Alliance (PeDRA) on education for researchers, patients, and families. These recorded webinars provide educational material to help…
National & Local Statements of Work Template
These Statements of Work for the national and local stakeholder committees lay out important project information, partnership values, partner responsibilities, and important logistical information such as compensation processes. This Statement…
Appalachian Mind Health Initiative SAC Charter
This Study Advisory Committee's Charter from the Appalachian Mind Health Initiative lays out the membership, committee operations, and responsibilities of the study's Stakeholder Advisory Committee. This charter could be used…
