Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 1 - 15 of 15 results
PaTH to Health Just-In-Time Data Analysis Training Part 1
This lay language training deck, along with its second part , clearly lays out the data analysis process. Part One focuses on observational study limitations and benefits, identifying variables of…
PaTH to Health Just-In-Time Data Analysis Training Part 2
This lay language training deck, along with its first part , clearly lays out the data analysis process. Part Two focuses on statistical testing to explain study data, understanding statstical…
Decoding the PaTH of EHR: How It's Collected, How It's Protected
This two-pager on electronic health data utilizes the metaphor of making chocolate to clearly lay out how electronic health records can be used to anonymize data. It is a useful…
PaTH to Partnership in Stakeholder-Engaged Research Dissemination Brief
This two-pager summarizes a published paper that discusses Engagement on the PaTH study. By providing a lay language brief, this short piece empowers partners to share their experiences with others…
PaTH to Health: Diabetes, Chocolate Making & Data Extraction Video
This video on electronic health data utilizes the metaphor of making chocolate to clearly lay out how electronic health records can be used to anonymize data. It is a useful…
CISTO External Advisory Board Charter
This board charter template can be used to help study teams clearly lay out the roles of their advisory boards, bodies or committees. Using the format and content provided in…
The SEED Method's Conceptual Model Training
This training deck guides users through the process of selecting a research question. Using this deck helps study teams onboard stakeholders to a PCOR project while also collecting information about…
PaTH to Health Newsletter
This newsletter by the PaTH study team includes research updates, spotlights on partners and team members, advertisements for study participants and more. It can be viewed by other research teams…
CISTO Advocate Advisory Board Onboarding and Training Manual
This onboarding and training manual can help study teams orient and onboard their stakeholder partners. It includes roles and responsibilities of partners, lay-language forms for partners to complete so they…
CISTO Year-In-Review Newsletter
The CISTO study team developed this newsletter to highlight the milestones of the first year of the study and preview what is upcoming in the following year. It includes an…
The SEED Method's Patient Stakeholder Identification Matrix
This recruitment strategy spreadsheet was created to help study teams identify and select possible individual and organizational partners. It can also serve as a template for managing engagement over the…
The SEED Method Complete Toolkit
This toolkit was specifically designed to improve stakeholder recruitment, selection and engagement. This comprehensive document includes an overview of the SEED Method, instructions, example documents – including timelines, meeting agendas…
PaTH to Health Just-In-Time Study Results and Dissemination Training
This training deck lays out the multiple channels through which data can be disseminated once it has been collected and analyzed. This deck could help study teams explain the dissemination…
Project ACE Resume Blurb for Patients
Research study participants and research study advisors can include this blurb on their resumes. Created by the University of Wisconsin Madison, the document also provides language included in the IRB…
CODA Patient Advisor Information
The University of Washington developed this role description for patient advisors participating in the CODA study. It contains information on patient advisor expectations, qualities, role, and time commitment, as well…
