Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 1 - 23 of 23 results
Appalachian Mind Health Initiative SAC Charter
This Study Advisory Committee's Charter from the Appalachian Mind Health Initiative lays out the membership, committee operations, and responsibilities of the study's Stakeholder Advisory Committee. This charter could be used…
SUMMIT Engagement Survey
This survey, created by the SUMMIT study team, is used to gather feedback on what went well and what could be improved after each study team meeting. The document could…
Personalized Treatments for Depressive Symptoms in Patients with Advanced Heart Failure - Stakeholder Engagement Survey
This survey was developed by the study team to better understand stakeholder partners' experiences as advisors. It could be used as a template or an example for other teams interested…
Appalachian Mind Health Initiative IMC Charter
This Charter from the Appalachian Mind Health Initiative lays out the membership, committee operations, and responsibilities of the study's Implementation Monitoring Committee, including required training. This charter could be used…
C3FIT Stakeholder Partner Memorandum of Understanding
This example of a Letter of Participation and Study Compensation from the C3FIT study outlines the duties of an advisor and lays out how payments will be executed. This document…
Personalized Treatments for Depressive Symptoms in Patients with Advanced Heart Failure - Engagement Presentation
This short, graphically pleasing summary of the impact that engagement had on study design and conduct was presented to study stakeholders so they could understand how important their input was…
C3FIT "What is 'patient-centeredness' in research?" Training
Developed for educating study teams about Patient-Centered Outcomes Research and the C3FIT study, this slide deck can be viewed as a resource for other teams to learn from.
C3FIT Stakeholder Research Training
This training deck is an example of a lay language presentation that clearly explains study questions, study design, and leadership structure of a PCOR study. It can be used by…
C3FIT Stroke Stakeholder Engagement One-Pager
This onboarding one-pager from the C3FIT Stroke study team lays out study details, the role of engagement, and the leadership on the study. It can be viewed as a template…
The SEED Method's Conceptual Model Training
This training deck guides users through the process of selecting a research question. Using this deck helps study teams onboard stakeholders to a PCOR project while also collecting information about…
C3FIT Stroke Clinical Site Engagement Committee Meeting Report Template
This communication tool guides conversations between local sites and their partners while also creating a short report that can be shared with the governance team. This resource will help plan…
SHIELD Patient and Caregiver Partner Recruitment Flyer
This recruitment flyer provides multiple entry points for possible study partners, from links to surveys to direct contact information. It will help partners find study teams and study teams find…
The SEED Method's Patient Stakeholder Identification Matrix
This recruitment strategy spreadsheet was created to help study teams identify and select possible individual and organizational partners. It can also serve as a template for managing engagement over the…
The SEED Method Complete Toolkit
This toolkit was specifically designed to improve stakeholder recruitment, selection and engagement. This comprehensive document includes an overview of the SEED Method, instructions, example documents – including timelines, meeting agendas…
"How the PAC is Making a Difference" Template
This communication tool clearly represents the positive impacts that partners have on studies. It guides users to lay out the topic, input and impact of engagement with stakeholders. This resource…
STAMP Patient Family Advisory Committee Meeting Agenda
This meeting agenda example provides both a template and suggested topics for a Patient and Family Advisory Committee meeting. It can be viewed to develop communication strategies and planning discussions.
Reach PC Stakeholder Engagement Log
This communication tool tracks touches with stakeholder partners. It will allow your research team to build strong relationships with partners by ensuring timely and clear communication. It lays out both…
C3FIT Stroke Clinical Site Engagement Committee Meeting Report Back Form Template
This communication tool ensures that recommendations made at local sites are registered and acted upon by both the local study team and the study's steering committee. This tool walks each…
STAMP Stakeholder Advisory Committee Meeting Agenda
This meeting agenda example provides both a template and suggested topics for a Stakeholder Advisory Committee meeting. It can be viewed to develop communication strategies and planning discussions.
CODA Patient Advisor Information
The University of Washington developed this role description for patient advisors participating in the CODA study. It contains information on patient advisor expectations, qualities, role, and time commitment, as well…
COMPASS Study Engagement Roadmap Example
This document outlines the key timepoints at which patients and other stakeholders will have input on the COMPASS study (Wake Forest University Health Sciences). It is meant to provide a…
SICP Review
Meeting materials shared with stakeholder advisors as part of the study kickoff meeting present a study overview and elements of the study protocol in an easily understandable format. The materials…
Patient Advisory Team Application for Effect of Integrating Mental and Physical Health on Patients' Experiences of Care Research Study
This is an application form used to review and select study advisors, developed by Providence Portland Medical Center. The application form could be used as an example or template for…
