Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
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Project ACE Resume Blurb for Patients
Research study participants and research study advisors can include this blurb on their resumes. Created by the University of Wisconsin Madison, the document also provides language included in the IRB modification for approval of the use of this language. The population of focus in this research study was teens, a group who may be more interested than others in highlighting research experiences on resumes for college and job applications. The resume blurb and sample language for IRB applications/modifications could be used as a template for other project teams to develop information for inclusion on resumes and CVs for participants and advisors.
CODA Patient Advisor Information
The University of Washington developed this role description for patient advisors participating in the CODA study. It contains information on patient advisor expectations, qualities, role, and time commitment, as well as a study organizational chart. The information presented in the document could inform the work of others developing or supporting work with patient advisors.
