Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 1 - 22 of 22 results
PaTH to Health Just-In-Time Data Analysis Training Part 1
This lay language training deck, along with its second part , clearly lays out the data analysis process. Part One focuses on observational study limitations and benefits, identifying variables of…
PaTH to Health Just-In-Time Data Analysis Training Part 2
This lay language training deck, along with its first part , clearly lays out the data analysis process. Part Two focuses on statistical testing to explain study data, understanding statstical…
Decoding the PaTH of EHR: How It's Collected, How It's Protected
This two-pager on electronic health data utilizes the metaphor of making chocolate to clearly lay out how electronic health records can be used to anonymize data. It is a useful…
PaTH to Partnership in Stakeholder-Engaged Research Dissemination Brief
This two-pager summarizes a published paper that discusses Engagement on the PaTH study. By providing a lay language brief, this short piece empowers partners to share their experiences with others…
PaTH to Health: Diabetes, Chocolate Making & Data Extraction Video
This video on electronic health data utilizes the metaphor of making chocolate to clearly lay out how electronic health records can be used to anonymize data. It is a useful…
CISTO External Advisory Board Charter
This board charter template can be used to help study teams clearly lay out the roles of their advisory boards, bodies or committees. Using the format and content provided in…
PaTH to Health Newsletter
This newsletter by the PaTH study team includes research updates, spotlights on partners and team members, advertisements for study participants and more. It can be viewed by other research teams…
CISTO Advocate Advisory Board Onboarding and Training Manual
This onboarding and training manual can help study teams orient and onboard their stakeholder partners. It includes roles and responsibilities of partners, lay-language forms for partners to complete so they…
CISTO Year-In-Review Newsletter
The CISTO study team developed this newsletter to highlight the milestones of the first year of the study and preview what is upcoming in the following year. It includes an…
PaTH to Health Just-In-Time Study Results and Dissemination Training
This training deck lays out the multiple channels through which data can be disseminated once it has been collected and analyzed. This deck could help study teams explain the dissemination…
Reach PC Stakeholder Engagement Log
This communication tool tracks touches with stakeholder partners. It will allow your research team to build strong relationships with partners by ensuring timely and clear communication. It lays out both…
REGAIN Trial Newsletter
This internal newsletter of the REGAIN Trial (University of Pennsylvania), was used to communicate key study updates, give participating research sites information they need, and remind team members of upcoming…
PREP IT PCOR Video
This video describes what patient-centered outcomes research (PCOR) is from the point of view of multiple stakeholders, including patients, research investigators, and research staff. The video could be used by…
COMPASS Study Engagement Roadmap Example
This document outlines the key timepoints at which patients and other stakeholders will have input on the COMPASS study (Wake Forest University Health Sciences). It is meant to provide a…
Study Participant Newsletter
A newsletter directed at OPC study participants shares an overview of the study and its importance, as well as the role of stakeholder advisors on the study. It also includes…
SICP Review
Meeting materials shared with stakeholder advisors as part of the study kickoff meeting present a study overview and elements of the study protocol in an easily understandable format. The materials…
SIMBA Newsletter
This newsletter to the Patient Advisory Board of the SIMBA study (Kaiser Permanente Washington Health Research Institute) shares project updates, upcoming meeting dates, and other articles of interest. The newsletter…
PREPARE NOW Work Group Structures & Processes
This diagram outlines the roles of various study workgroups on the PREPARE NOW study (Duke University). The diagram could serve as an example for other study teams setting up study…
WISE Study Kick-Off Meeting Materials
Meeting materials from the SAFE Study (Pennsylvania State University) kickoff meeting with research study investigators and patient co-investigators include a study overview; organizational chart; descriptions, membership roster, and responsibilities of…
P&F Stakeholder Description
These brief descriptions of various stakeholder advisor roles on the BRITE research study (University of Washington) could be used by other teams as an example of how to structure stakeholder…
PREPARE NOW Publication & Authorship Talking Points
This resource provides plain language talking points developed for study investigators, personnel, and advisors to share information about the PREPARE NOW study (Duke University). These talking points could be used…
PREPARE NOW Website
The study website for the PREPARE NOW study (Duke University) contains information on the study, participating study sites, and organizational advisors/partners, as well as a blog with posts on study-related…
