Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 1 - 17 of 17 results
SMART Memorandum of Understanding
The SMART study team put together this Memoranda of Understanding for their Patient Stakeholder Group and their Study Advisory Committee to ensure that their partners had a clear understanding of…
OPT PSI Community Memorandum of Understanding
This Agreement between community advisors and study team members lays out study details and partner responsibilities. It could be used as an example or template by other study teams.
SHIELD Patient and Caregiver Partner Recruitment Flyer
This recruitment flyer provides multiple entry points for possible study partners, from links to surveys to direct contact information. It will help partners find study teams and study teams find…
"How the PAC is Making a Difference" Template
This communication tool clearly represents the positive impacts that partners have on studies. It guides users to lay out the topic, input and impact of engagement with stakeholders. This resource…
STAMP Patient Family Advisory Committee Meeting Agenda
This meeting agenda example provides both a template and suggested topics for a Patient and Family Advisory Committee meeting. It can be viewed to develop communication strategies and planning discussions.
STAMP Stakeholder Advisory Committee Meeting Agenda
This meeting agenda example provides both a template and suggested topics for a Stakeholder Advisory Committee meeting. It can be viewed to develop communication strategies and planning discussions.
COMET DCIS Stakeholder Advisory Board Baseline Survey
A survey developed by the Alliance for Clinical Trials in Oncology Foundation for collecting information from members of a stakeholder advisory board could be used as an example or template…
PREP IT PCOR Video
This video describes what patient-centered outcomes research (PCOR) is from the point of view of multiple stakeholders, including patients, research investigators, and research staff. The video could be used by…
COMET DCIS Stakeholder Advisory Board Engagement Evaluation Report
This evaluation report by the Alliance for Clinical Trials in Oncology Foundation summarizes the evaluation efforts conducted by the study team to solicit advisor feedback on improvements for the COMET…
COMET DCIS Stakeholder Advisory Board Charter
This stakeholder advisory charter was developed by the Alliance for Clinical Trials in Oncology Foundation to describe the composition, roles and responsibilities of the COMET stakeholder advisory board. The charter…
COMET DCIS Stakeholder Advisory Board Engagement Evaluation Plan
This evaluation plan was developed by the Alliance for Clinical Trials in Oncology Foundation to evaluate the engagement of multiple stakeholder types in the COMET study Stakeholder Advisory Board. The…
COMPASS Study Engagement Roadmap Example
This document outlines the key timepoints at which patients and other stakeholders will have input on the COMPASS study (Wake Forest University Health Sciences). It is meant to provide a…
Study Participant Newsletter
A newsletter directed at OPC study participants shares an overview of the study and its importance, as well as the role of stakeholder advisors on the study. It also includes…
SICP Review
Meeting materials shared with stakeholder advisors as part of the study kickoff meeting present a study overview and elements of the study protocol in an easily understandable format. The materials…
SIMBA Newsletter
This newsletter to the Patient Advisory Board of the SIMBA study (Kaiser Permanente Washington Health Research Institute) shares project updates, upcoming meeting dates, and other articles of interest. The newsletter…
Patient Advisory Team Application for Effect of Integrating Mental and Physical Health on Patients' Experiences of Care Research Study
This is an application form used to review and select study advisors, developed by Providence Portland Medical Center. The application form could be used as an example or template for…
COMET DCIS Stakeholder Advisory Board Meeting Survey
This survey was developed by the Alliance for Clinical Trials in Oncology Foundation to obtain feedback from stakeholder advisors on an advisory board meeting. The document could be used as…
