Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 1 - 25 of 97 results
Partnering for Research
A website created by the University of Vermont & State Agricultural College in partnership with the Multiple Chronic Conditions (MCC) Community to share lessons learned and wisdom gained form partnering…
Amplifying Peer Priorities in Mood Disorders Research
This document contains a description of peer priorities for mood disorders research compiled from (1) a review of survey data previously collected by DBSA and (2) a multi-stakeholder convening. The…
Community Readiness for Virtual Health Engagement
This document describes the assessment of community readiness for virtual engagement. The group developed a Checklist of Community Readiness for Virtual Health Engagement. This checklist can be used as a…
Empowering Mothers and Providers and Other Stakeholders to Weigh in as Experts in Research (EMPOWER) Patient-Centered Research Priority Report
This Patient-Centered Research Priority Report provides researchers a prioritized list of patient-centered research questions, leading to meaningful studies for end users. It contains research priorities and questions related to substance…
Virtual Community Engagement Studio Toolkit
The toolkit builds on the Community Engagement Studio (CES) model and toolkit developed by the Meharry-Vanderbilt Community Engaged Research Core. The Maternal Mental Health Research Collaborative tailored the model for…
Case Study Examples: Engaging in PCOR
This Case Study Activity was developed by Pennsylvania State University Hershey Medical Center and used during a community health worker training. This activity provides case studies for participants on patient-centered…
Spanish Infographic: What is Research?
An infographic developed by Pennsylvania State University Hershey Medical Center providing a high-level overview of what research is. This infographic is intended for (CHWs) in patient-centered outcomes research. This infographic…
Infographic: What is Research?
An infographic developed by Pennsylvania State University Hershey Medical Center providing a high-level overview of what research is. This infographic is intended for (CHWs) in patient-centered outcomes research. This infographic…
Infographic: Value of PCOR
An infographic developed by Pennsylvania State University Hershey Medical Center providing a high-level overview of benefits of engaging Community Health Workers (CHWs) in patient-centered outcomes research. The infographic is intended…
Pharmacy Innovation Network Tools for Partnered Research Engagement Kit
The Research Engagement Kit has resources that can be used by patients, community pharmacists, and researchers. It includes items to help researchers share their study information with pharmacists and patients…
RaRE Disease Research and Engagement Stakeholder Engagement Plan
The purpose of this Stakeholder Engagement Plan is to identify how The RaRE Disease Research project team will conduct stakeholder engagement to hold a successful convening that ensures the meaningful…
Agenda Template by REACHnet
This agenda template was developed by the Research Action for Health Network (REACHnet). It was created with patient stakeholders’ input for use during study meetings that include stakeholders, such as…
Community Engagement Studio Toolkit
The toolkit builds on the Community Engagement Studio (CES) model and toolkit developed by the Meharry-Vanderbilt Community Engaged Research Core (CERC). The Maternal Mental Health Research Collaborative (MMHRC) tailored the…
HICOR Patient Engagement Plan
The Hutchinson Institute for Cancer Outcomes Research (HICOR) Patient Engagement Plan 2020 was created to develop a patient engagement plan which effectively integrates patient partners in research aimed at improving…
PaTH to Health Just-In-Time Data Analysis Training Part 1
This lay language training deck, along with its second part , clearly lays out the data analysis process. Part One focuses on observational study limitations and benefits, identifying variables of…
PaTH to Health Just-In-Time Data Analysis Training Part 2
This lay language training deck, along with its first part , clearly lays out the data analysis process. Part Two focuses on statistical testing to explain study data, understanding statstical…
PaTH to Partnership in Stakeholder-Engaged Research Dissemination Brief
This two-pager summarizes a published paper that discusses Engagement on the PaTH study. By providing a lay language brief, this short piece empowers partners to share their experiences with others…
"How the PAC is Making a Difference" Template
This communication tool clearly represents the positive impacts that partners have on studies. It guides users to lay out the topic, input and impact of engagement with stakeholders. This resource…
Patient Engagement Toolkit
The Patient Outcomes Research to Advance Learning (PORTAL) Clinical Research Network (CRN) created this toolkit to support researchers who want to engage with patients in conducting research. This toolkit includes…
Health in Our Hands Clinic Manual
This document created by Research Action for Health Network (REACHnet) Clinical Research Network (CRN) provides an overview of their Health in Our Hands initiative, which provides a platform for patient…
Governance Document
This document by the Patient Outcomes Research to Advance Learning (PORTAL) Clinical Research Network (CRN) provides an overview of their governance structure, including the approach to decision making, data governance…
Smart Patients Dissemination Packet
This dissemination packet by the PCORnet ® Bariatric Study (PBS) provides information on how the team engaged patients by partnering with Smart Patients, an online community of more than 10,000…
Accelerating Clinical Knowledge Generation and Use
In this presentation, Tom Carton, PhD, MS, from Research Action for Health Network (REACHnet) Clinical Research Network (CRN) discusses the process the network used to convene a multi-stakeholder group to…
Engagement Policy
The Research Action for Health Network (REACHnet) Clinical Research Network (CRN) has developed a comprehensive Engagement Policy to advance the mission of PCORI to meaningfully engage patient and other stakeholders…
Engagement Plan
This document by the PCORnet ® Bariatric Study (PBS) provides an overview of the study's Engagement Plan, including information about the study’s engagement efforts. This document can serve as a…
