Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 1 - 25 of 71 results
Amplifying Peer Priorities in Mood Disorders Research
This document contains a description of peer priorities for mood disorders research compiled from (1) a review of survey data previously collected by DBSA and (2) a multi-stakeholder convening. The…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: INSIGHT
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the INSIGHT Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: GPC
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the Greater Plains Collaborative…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: PaTH
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the PaTH Clinical Research…
Empowering Mothers and Providers and Other Stakeholders to Weigh in as Experts in Research (EMPOWER) Patient-Centered Research Priority Report
This Patient-Centered Research Priority Report provides researchers a prioritized list of patient-centered research questions, leading to meaningful studies for end users. It contains research priorities and questions related to substance…
Value Proposition Playbook for Participant-Driven Research in Health Care
This resource is an action-oriented guide developed by and for patient and participant-driven research communities (PDRCs) to sustain their work by demonstrating value to their partners, including their participants and…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: STAR
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the STAR Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: REACHnet
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the REACHnet Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: PEDSnet
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the PEDSnet Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: OneFlorida
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the OneFlorida Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: CAPriCORN
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the CAPriCORN Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: ADVANCE
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the ADVANCE Clinical Research…
Digital Strategies for Returning Value to Research Participants Issue Brief
This issue brief offers a snapshot of the full Digital Strategies for Returning Value to Research Participants report (available here), which examines principles for returning value to research participants and…
Digital Strategies for Returning Value to Research Participants Report
This report examines principles for returning value to research participants and provides examples of digitally based engagement strategies sourced from literature scans and case study interviews from the PCORI-funded Patient/Participant-Driven…
Patient Partner Position Description by REACHnet
In this document, the Research Action for Health Network (REACHnet) Clinical Research Network (CRN) describes the roles and scope of a patient- partner consultant. This resource can be used by…
Patient Engagement Officer Description by the Greater Plains Collaborative
In this document, the Greater Plains Collaborative (GPC) Clinical Research Network (CRN) describes the role of a Patient Engagement Officer (PEO). This resource can be used by researchers and other…
Patient Advisors Description by the Greater Plains Collaborative
The Greater Plains Collaborative (GPC) Clinical Research Network (CRN) describes the role of a Patient Advisors Council (PAC) patient or caregiver member in this template. This resource can be used…
CAPriCORN Patient and Community Advisory Committee (PCAC) Consultation Abstract Form
The Chicago Area Patient-Centered Outcomes Research Network (CAPriCORN) Clinical Research Network (CRN) created this consultation abstract form for researchers to submit their study plans to the CAPriCORN Patient and Community…
OCHIN-ADVANCE Engagement Values, Functions, and Metrics
The Accelerating Data Value Across a National Community Health Center (ADVANCE) Clinical Research Network (CRN) outlined its priorities and metrics for engagement across patient and caregiver groups in this snapshot…
HICOR Patient Engagement Plan
The Hutchinson Institute for Cancer Outcomes Research (HICOR) Patient Engagement Plan 2020 was created to develop a patient engagement plan which effectively integrates patient partners in research aimed at improving…
PaTH to Partnership in Stakeholder-Engaged Research Dissemination Brief
This two-pager summarizes a published paper that discusses Engagement on the PaTH study. By providing a lay language brief, this short piece empowers partners to share their experiences with others…
CISTO External Advisory Board Charter
This board charter template can be used to help study teams clearly lay out the roles of their advisory boards, bodies or committees. Using the format and content provided in…
Health in Our Hands Clinic Manual
This document created by Research Action for Health Network (REACHnet) Clinical Research Network (CRN) provides an overview of their Health in Our Hands initiative, which provides a platform for patient…
Governance Document
This document by the Patient Outcomes Research to Advance Learning (PORTAL) Clinical Research Network (CRN) provides an overview of their governance structure, including the approach to decision making, data governance…
Smart Patients Dissemination Packet
This dissemination packet by the PCORnet ® Bariatric Study (PBS) provides information on how the team engaged patients by partnering with Smart Patients, an online community of more than 10,000…
