Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 51 - 75 of 75 results
Three Breakout Sessions: Public Involvement in Dementia Care Research
The University of Texas San Antonio held a symposium in collaboration with their annual geriatrics conference. Specific breakout sessions were designed for PCORI participants and facilitated by members of the…
Building Successful Collaborations with Communities-A Guidebook for Researchers, Agency and Organization Staff
This guidebook created by Comagine Health is a compilation of recommendations from community leaders, community liaisons, and community engaged researchers to researchers, agency and organization staff to empower their collaborators…
Health Research Agenda: Migratory/Seasonal Farmworkers and Care Providers
This document, created through the University of Kansas Center of Research, is a health research agenda created to specifically address the needs and perspectives of migratory and seasonal farmworkers. The…
Minority Engagement in MS Research Community Partner Toolkit
Accelerated Cure Project and the MS Minority Research Engagement Partnership Network created this toolkit for multiple sclerosis (MS) community partners to increase awareness of the importance of people from all…
Research Ready Workbook for Clinical Staff Implementing Research
As more health research studies are taking place in traditional healthcare delivery environments, engagement of clinical staff in research activities has emerged as a key factor for success. However, clinic…
NEC Society's 10-Step Guide for an All-In Meeting
This 10-Step Guide to an All-In Meeting, was created by the NEC Society after their NEC Symposium. This framework walks through strategies for academic, scientific, and clinical faculty. Patients and…
Moving Beyond Population Averages: Patient Principles for a Personalized Medicine Research Agenda Web Forums
Personalized Medicine Coalition convened patients, patient advocates, caregivers, healthcare professionals and academic researchers in a two-year project to develop a patient-centered research agenda identifying evidence gaps that must be filled…
Minority Engagement in MS Research: Patient Recruitment Toolkit for Health Care Professionals
Accelerated Cure Project and the MS Minority Research Engagement Partnership Network created this toolkit for researchers to learn more about what is currently known about multiple sclerosis research in different…
Research Ready Guide for Engaging Clinical Staff in Research Studies
As more health research studies are taking place in traditional healthcare delivery environments, engagement of clinical staff in research activities has emerged as a key factor for success. However, clinic…
PCOR Toolkit
This toolkit is designed by El Futuro, Inc. specifically to improve the capacity for and knowledge of patient-centered outcomes research for community behavioral health organizations serving Latinos but could be…
Mock Studio on Community Participation in Research Video
This video recording of a mock community studio is an engagement approach employed by the HealthInsight group. The video provides a model that other teams could follow to solicit input…
Bureau of Sages Training Toolkit
This toolkit provides examples of approaches, topics, and activities used to train Sages during the two-year development phase of the Bureau of Sages at CJE SeniorLife. The toolkit could serve…
Spanish Home Care Aide Manual
This is a Spanish translation of a training manual developed by Northwestern University to enable home care aides and their clients to identify health and well-being topics for research. The…
2017 Topic Nomination Survey
This survey developed by AcademyHealth asks state Medicaid directors to nominate and prioritize topics within PCORI's priority areas for research. It can be used by others as a model for…
Research Partnership Sustainability Discussion Guide
This is a discussion guide created by the Partners in Partnership Sustainability Team used to facilitate group discussions around research partnership sustainability. Other teams could use this guide as a…
Home Care Aide Manual
This is a training manual developed by Northwestern University to enable home care aides and their clients to identify health and well-being topics for research. The manual also includes tips…
Orientation Training Manual
This is an orientation manual for the Patient-Centered Research Collaborative Group for Psychosocial Oncology. This research collaborative group is composed of social workers, patient advocates, and academic researchers whose goal…
Webinar: Engaging Patients and Community Stakeholders in CHNAs
This webinar presented by Health Research and Educational Trust shares a developed comprehensive model for effectively involving patients and community members in the community health needs assessments process. Other organizations…
PFAC Education/Engagement Manual about PCOR Toolkit
This toolkit developed by Planetree is intended to support Patient-Family Advisory Councils (PFACs) engagement in research. Organized around the conceptual model of patient engagement in research, it provides practical guidance…
Analysis of Direct Prioritization of Standards
This report developed by El Futuro, Inc. outlines the process used to define standards of engagement developed through the course of the project. The report includes the methods conducted along…
Give-Get Matrix
Developed by the Boston Medical Center, this give-get matrix assists in partnership development by having each partner define their expectations and interests to find common ground. The document could serve…
DREAMS Toolkit
This training manual developed by the DREAMS Program at Emory University aims to help teams address low participation rates in research among various ages, ethnic/racial groups, and socioeconomic strata. The…
Dissemination Summary Webinar Protocol and Guide for Facilitators
This webinar facilitators guide was developed by the BeTTER SAID (Engagement in Research for Selection of Arthroplasty Implant Devices) team at the Global Healthy Living Foundation. The original purpose of…
Inspiring Change: Community-Based Participatory Research Manual
Developed by the Illinois Institute of Technology for community members, researchers, and care providers, this training manual shares how to conduct community-based participatory research (CBPR) in their communities. The guide…
2018 Topic Nomination Survey
This survey was developed by AcademyHealth to ask state Medicaid directors to nominate and prioritize topics within PCORI's priority areas for research. This survey can be used by others as…
