Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 1 - 25 of 26 results
Empowering Mothers and Providers and Other Stakeholders to Weigh in as Experts in Research (EMPOWER) Patient-Centered Research Priority Report
This Patient-Centered Research Priority Report provides researchers a prioritized list of patient-centered research questions, leading to meaningful studies for end users. It contains research priorities and questions related to substance…
Agenda Template by REACHnet
This agenda template was developed by the Research Action for Health Network (REACHnet). It was created with patient stakeholders’ input for use during study meetings that include stakeholders, such as…
PaTH to Health Just-In-Time Data Analysis Training Part 1
This lay language training deck, along with its second part , clearly lays out the data analysis process. Part One focuses on observational study limitations and benefits, identifying variables of…
"How the PAC is Making a Difference" Template
This communication tool clearly represents the positive impacts that partners have on studies. It guides users to lay out the topic, input and impact of engagement with stakeholders. This resource…
A Model for Sustainable, People-centered Engagement
The Health eHeart Alliance (The Alliance) Patient-Powered Research Network (PPRN) created this cause group model to create more opportunities for sustained patient engagement. In this guide, there are resources The…
Principles of Partnership Self-Assessment Tool
This tool developed by the Greater Plains Collaborative (GPC) Clinical Research network (CRN) is used to assess and determine the extent to which their network’s research has abided by the…
Rare Organization Snapshot Template
This template was created by the Rare Epilepsy Network (REN) Patient-Powered Research Network (PPRN) to capture information about rare epilepsy organizations and their affiliated conditions within the network. Use this…
Transformational Approaches to Achieving Health Equity through Engaged Research
This slide deck from a webinar by Consuelo H. Wilkins, MD, MSCI, examines components of diversity and provides a review of engaged research approaches needed to address disparities. This information…
Leveraging Social Media to Raise Awareness and Build Community
Social media specialists Joseph M. Coe, MPA, from the PCORnet® Patient-Powered Research Network (PPRN) ArthritisPower (formerly AR-PoWER) and M. Patricia McAdams, MS, from the PCORnet Coordinating Center explore the opportunities…
Stakeholder Contributions to Scientific Manuscripts and a Web-Based Platform for Engaging and Connecting Patients & Caregivers
The PCORnet ® Bariatric Study (PBS) team shares their approach to meaningfully including stakeholders in their study. Specifically, the team discusses their manuscript development process and how they leveraged Smart…
OCHIN-ADVANCE Patient Engagement Panel Handbook
The Accelerating Data Value Across a National Community Health Center (ADVANCE) Clinical Research Network (CRN) Patient Engagement Panel (PEP) Guidebook was created to describe engagement policies, procedures, benefits, and practices…
Diversity and Inclusion
This document, developed by the PCORnet ® Engagement Committee, is intended to provide guiding principles for diversity and inclusion in PCORnet. It can be used by researchers and organizations to…
Outreach Plan and Checklist Template
This outreach template was developed by the PCORnet ® Genetic Alliance Coordinating Center to guide the creation of an outreach plan. Use the guiding questions and checklist in this document…
Plain Language Principles Infographic
This infographic developed by the PCORnet ® Genetic Alliance Coordinating Center is focused on health literacy and using plain language in health research communications. Clinicians and researchers can use these…
Engagement Assessment Tool
This engagement assessment tool developed by the PCORNet ® Engagement Committee describes principles to consider throughout your shared research process. Organizations can use these principles to help nurture essential partnerships…
Elements for Effective Engagement
This document, developed by the PCORnet ® Engagement Committee, outlines key elements for stakeholder’s engagement in research. The elements included were identified through a review of the literature and gathering…
Clinical Engagement Value Proposition
This resource, developed by the PCORnet ® Engagement Committee, provides a clear proposition for the value of incorporating research into daily medical practice that had not previously been well described…
PCOR Toolkit
This toolkit is designed by El Futuro, Inc. specifically to improve the capacity for and knowledge of patient-centered outcomes research for community behavioral health organizations serving Latinos but could be…
Mock Studio on Community Participation in Research Video
This video recording of a mock community studio is an engagement approach employed by the HealthInsight group. The video provides a model that other teams could follow to solicit input…
2017 Topic Nomination Survey
This survey developed by AcademyHealth asks state Medicaid directors to nominate and prioritize topics within PCORI's priority areas for research. It can be used by others as a model for…
Research Partnership Sustainability Discussion Guide
This is a discussion guide created by the Partners in Partnership Sustainability Team used to facilitate group discussions around research partnership sustainability. Other teams could use this guide as a…
Analysis of Direct Prioritization of Standards
This report developed by El Futuro, Inc. outlines the process used to define standards of engagement developed through the course of the project. The report includes the methods conducted along…
Give-Get Matrix
Developed by the Boston Medical Center, this give-get matrix assists in partnership development by having each partner define their expectations and interests to find common ground. The document could serve…
DREAMS Toolkit
This training manual developed by the DREAMS Program at Emory University aims to help teams address low participation rates in research among various ages, ethnic/racial groups, and socioeconomic strata. The…
Dissemination Summary Webinar Protocol and Guide for Facilitators
This webinar facilitators guide was developed by the BeTTER SAID (Engagement in Research for Selection of Arthroplasty Implant Devices) team at the Global Healthy Living Foundation. The original purpose of…
