Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 101 - 125 of 169 results
2016 Patient Governor Group Interview Template
This document contains interview questions for prospective ArthritisPower (formerly AR-PoWER) Patient-Powered Research Network (PPRN) Patient Governors. This template can be used by researchers or research organizations when interviewing potential patient…
Patient Governor Group Application
This is an application form for those interested in joining the ArthritisPower (formerly AR-PoWER) Patient-Powered Research Network (PPRN) Patient Governor Group. This can be used by researchers or research organizations…
2016 Patient Governor Group Position Description
This document contains the program and position description for the Patient Governor Group of ArthritisPower (formerly AR-PoWER) Patient-Powered Research Network (PPRN). This can be used by researchers or research organizations…
Leveraging Social Media to Raise Awareness and Build Community
Social media specialists Joseph M. Coe, MPA, from the PCORnet® Patient-Powered Research Network (PPRN) ArthritisPower (formerly AR-PoWER) and M. Patricia McAdams, MS, from the PCORnet Coordinating Center explore the opportunities…
Stakeholder Contributions to Scientific Manuscripts and a Web-Based Platform for Engaging and Connecting Patients & Caregivers
The PCORnet ® Bariatric Study (PBS) team shares their approach to meaningfully including stakeholders in their study. Specifically, the team discusses their manuscript development process and how they leveraged Smart…
Stakeholder Engagement Policy
The Accessible Research Commons for Health (ARCH) Clinical Research Network (CRN) Stakeholder Engagement Policy outlines the network and engagement principles for promoting transparency of, and trust in, the ARCH network…
OCHIN Engagement and Recruitment Guide
This document is an introductory guide for those interested in working with the Accelerating Data Value Across a National Community Health Center (ADVANCE) Clinical Research Network (CRN). It describes engagement…
Researcher Collaboration Request Form
This is the form used by the American BRCA Outcomes and Utilization of Testing (ABOUT) Patient-Powered Research Network (PPRN) and Facing Our Risk of Cancer Empowered (FORCE) for research collaboration…
OCHIN-ADVANCE Patient Engagement Panel Guide and Request Form
The Accelerating Data Value Across a National Community Health Center (ADVANCE) Clinical Research Network (CRN) developed a request form for researchers to engage with their Patient Engagement Panel (PEP). This…
OCHIN-ADVANCE Patient Engagement Panel Handbook
The Accelerating Data Value Across a National Community Health Center (ADVANCE) Clinical Research Network (CRN) Patient Engagement Panel (PEP) Guidebook was created to describe engagement policies, procedures, benefits, and practices…
Health Literacy Presentation
This PowerPoint presentation from PARTNERS Patient-Powered Research Network (PPRN) is used to educate people on the importance of health literacy. It can be used by organizations to learn more about…
Diversity and Inclusion
This document, developed by the PCORnet ® Engagement Committee, is intended to provide guiding principles for diversity and inclusion in PCORnet. It can be used by researchers and organizations to…
PRIDEnet and ArthritisPower: Community Engagement Using Digital Technologies
This presentation from PRIDEnet and ArthritisPower (formerly AR-PoWER) Patient-Powered Research Networks (PPRN) explores community engagement practices using online technologies. Use this guide to learn how to use multiple tools and…
Clinician Engagement
This presentation from Duke University describes steps to overcome barriers for successful engagement of clinicians throughout the research process. The concepts presented in the slides can be adopted by multiple…
Engagement Assessment Project: Results of the Engagement Assessment Project
In 2018, the Genetic Alliance Coordinating Center set out to capture and describe the engagement practices and lessons learned across PCORnet®. This presentation may be useful to stakeholders who want…
Outreach Plan and Checklist Template
This outreach template was developed by the PCORnet ® Genetic Alliance Coordinating Center to guide the creation of an outreach plan. Use the guiding questions and checklist in this document…
Plain Language Principles Infographic
This infographic developed by the PCORnet ® Genetic Alliance Coordinating Center is focused on health literacy and using plain language in health research communications. Clinicians and researchers can use these…
Engagement Assessment Tool
This engagement assessment tool developed by the PCORNet ® Engagement Committee describes principles to consider throughout your shared research process. Organizations can use these principles to help nurture essential partnerships…
Elements for Effective Engagement
This document, developed by the PCORnet ® Engagement Committee, outlines key elements for stakeholder’s engagement in research. The elements included were identified through a review of the literature and gathering…
Clinical Engagement Value Proposition
This resource, developed by the PCORnet ® Engagement Committee, provides a clear proposition for the value of incorporating research into daily medical practice that had not previously been well described…
Writing Team Orientation Packet
The PARTNERS Patient-Powered Research Network (PPRN) Writing Team Orientation Packet provides team members an overview of their roles and responsibilities and the importance of their participation in health-literate communication. The…
Prioritized Health Research Agenda: Improving Health by Engaging Refugees in Denver
This prioritized health research agenda, developed through the University of Colorado Denver, provides a guide to future collaborative research between research teams, advisory boards, and broader refugee communities. The identified…
Three Breakout Sessions: Public Involvement in Dementia Care Research
The University of Texas San Antonio held a symposium in collaboration with their annual geriatrics conference. Specific breakout sessions were designed for PCORI participants and facilitated by members of the…
Building Successful Collaborations with Communities-A Guidebook for Researchers, Agency and Organization Staff
This guidebook created by Comagine Health is a compilation of recommendations from community leaders, community liaisons, and community engaged researchers to researchers, agency and organization staff to empower their collaborators…
Survey Design for Community Members
Over two decades of research underscore the importance of initial pathways to care for youth and young adults (Y/YA) with nascent serious mental illness, with negative pathways having been found…
