Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 1 - 16 of 16 results
C3FIT "What is 'patient-centeredness' in research?" Training
Developed for educating study teams about Patient-Centered Outcomes Research and the C3FIT study, this slide deck can be viewed as a resource for other teams to learn from.
"How the PAC is Making a Difference" Template
This communication tool clearly represents the positive impacts that partners have on studies. It guides users to lay out the topic, input and impact of engagement with stakeholders. This resource…
Community Advisory Council Application
This is an application form developed by the Interactive Autism Network (IAN) Patient-Powered Research Network (PPRN) to review and select Community Advisory Council members. This application form could be used…
Principles of Partnership Self-Assessment Tool
This tool developed by the Greater Plains Collaborative (GPC) Clinical Research network (CRN) is used to assess and determine the extent to which their network’s research has abided by the…
Governance Policy
This is the National Alzheimer's & Dementia Patient- & Caregiver-Powered Research Network (AD-PCPRN) governance policy, which highlights this Patient-Powered Research Network’s (PPRN) governance and operational policies. This document can be…
OCHIN-ADVANCE Patient Engagement Panel Handbook
The Accelerating Data Value Across a National Community Health Center (ADVANCE) Clinical Research Network (CRN) Patient Engagement Panel (PEP) Guidebook was created to describe engagement policies, procedures, benefits, and practices…
PCOR Toolkit
This toolkit is designed by El Futuro, Inc. specifically to improve the capacity for and knowledge of patient-centered outcomes research for community behavioral health organizations serving Latinos but could be…
CRITICAL Membership Agreement/Memorandum of Understanding
A Memorandum of Understanding (MOU) between the members of the Coalition for Recovery and Innovation in Traumatic Brain Injury Care Across the Lifespan (CRITICAL). The MOU outlines the agreements made…
Inborn Errors of Metabolism Collaborative Stakeholder Network Governance Document
This governance document of the Inborn Errors of Metabolism Collaborative highlights organizational structure, roles, and responsibilities for building a network of patients and stakeholders to inform treatment decisions for phenylketonuria…
Introduction to Coalition for Recovery and Innovation in Traumatic Brain Injury Care Across the Lifespan (CRITICAL) Presentation
This slide deck provides an introduction to the goals and values for partners to the Coalition for Recovery and Innovation in Traumatic Brain Injury Care Across the Lifespan (CRITICAL). The…
COMET DCIS Stakeholder Advisory Board Charter
This stakeholder advisory charter was developed by the Alliance for Clinical Trials in Oncology Foundation to describe the composition, roles and responsibilities of the COMET stakeholder advisory board. The charter…
COMET DCIS Stakeholder Advisory Board Engagement Evaluation Plan
This evaluation plan was developed by the Alliance for Clinical Trials in Oncology Foundation to evaluate the engagement of multiple stakeholder types in the COMET study Stakeholder Advisory Board. The…
COMPASS Study Engagement Roadmap Example
This document outlines the key timepoints at which patients and other stakeholders will have input on the COMPASS study (Wake Forest University Health Sciences). It is meant to provide a…
PREPARE NOW Publication & Authorship Talking Points
This resource provides plain language talking points developed for study investigators, personnel, and advisors to share information about the PREPARE NOW study (Duke University). These talking points could be used…
Action Planning Committee Memorandum of Understanding
The University of California, Riverside developed this Memorandum of Understanding to identify the respective responsibilities of stakeholders and project leads. Other teams could use this document as an example to…
Dissemination Summary Webinar Protocol and Guide for Facilitators
This webinar facilitators guide was developed by the BeTTER SAID (Engagement in Research for Selection of Arthroplasty Implant Devices) team at the Global Healthy Living Foundation. The original purpose of…
