Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 1 - 25 of 184 results
Partnering for Research
A website created by the University of Vermont & State Agricultural College in partnership with the Multiple Chronic Conditions (MCC) Community to share lessons learned and wisdom gained form partnering…
Amplifying Peer Priorities in Mood Disorders Research
This document contains a description of peer priorities for mood disorders research compiled from (1) a review of survey data previously collected by DBSA and (2) a multi-stakeholder convening. The…
Type B Aortic Dissection (TBAD) Collaborative Governance Document
The University of Washington Type B Aortic Dissection (TBAD) Collaborative has drafted a governance document for team management.
Community Readiness for Virtual Health Engagement
This document describes the assessment of community readiness for virtual engagement. The group developed a Checklist of Community Readiness for Virtual Health Engagement. This checklist can be used as a…
Empowering Mothers and Providers and Other Stakeholders to Weigh in as Experts in Research (EMPOWER) Patient-Centered Research Priority Report
This Patient-Centered Research Priority Report provides researchers a prioritized list of patient-centered research questions, leading to meaningful studies for end users. It contains research priorities and questions related to substance…
Empowering Mothers and Providers and Other Stakeholders to Weigh in as Experts in Research (EMPOWER) All-In Meeting Summary
This meeting summary, created by Cincinnati Children's Hospital Medical Center, provides an overview of the methods and results from their four All-In meetings. All stakeholders came together to develop a…
Virtual Community Engagement Studio Toolkit
The toolkit builds on the Community Engagement Studio (CES) model and toolkit developed by the Meharry-Vanderbilt Community Engaged Research Core. The Maternal Mental Health Research Collaborative tailored the model for…
Case Study Examples: Engaging in PCOR
This Case Study Activity was developed by Pennsylvania State University Hershey Medical Center and used during a community health worker training. This activity provides case studies for participants on patient-centered…
Spanish Infographic: What is Research?
An infographic developed by Pennsylvania State University Hershey Medical Center providing a high-level overview of what research is. This infographic is intended for (CHWs) in patient-centered outcomes research. This infographic…
Infographic: What is Research?
An infographic developed by Pennsylvania State University Hershey Medical Center providing a high-level overview of what research is. This infographic is intended for (CHWs) in patient-centered outcomes research. This infographic…
Infographic: Value of PCOR
An infographic developed by Pennsylvania State University Hershey Medical Center providing a high-level overview of benefits of engaging Community Health Workers (CHWs) in patient-centered outcomes research. The infographic is intended…
African Immigrant Health Research Consortium Partnership Agreement
The purpose of this partnership agreement is to establish the African Immigrant Health Research Consortium. The goal of this project is to bring partners together to foster research collaborations and…
Pharmacy Innovation Network Tools for Partnered Research Engagement Kit
The Research Engagement Kit has resources that can be used by patients, community pharmacists, and researchers. It includes items to help researchers share their study information with pharmacists and patients…
RaRE Disease Research and Engagement Stakeholder Engagement Plan
The purpose of this Stakeholder Engagement Plan is to identify how The RaRE Disease Research project team will conduct stakeholder engagement to hold a successful convening that ensures the meaningful…
Agenda Template by REACHnet
This agenda template was developed by the Research Action for Health Network (REACHnet). It was created with patient stakeholders’ input for use during study meetings that include stakeholders, such as…
Community Engagement Studio Toolkit
The toolkit builds on the Community Engagement Studio (CES) model and toolkit developed by the Meharry-Vanderbilt Community Engaged Research Core (CERC). The Maternal Mental Health Research Collaborative (MMHRC) tailored the…
HICOR Patient Engagement Plan
The Hutchinson Institute for Cancer Outcomes Research (HICOR) Patient Engagement Plan 2020 was created to develop a patient engagement plan which effectively integrates patient partners in research aimed at improving…
Pediatric Dermatology Research Alliance (PeDRA) Webinars for Researchers, Clinicians, and Patients
This website provides access to archived webinars conducted by the Pediatric Dermatology Research Alliance (PeDRA) on education for researchers, patients, and families. These recorded webinars provide educational material to help…
Equality State Research Network Charter
The Equality State Research Network (ESRN) works closely with partners across Wyoming to develop and answer research questions relevant to providers, educators, patients, families, and others within local communities. The…
Wyoming Community & Practice-Based Research Network MOU
The purpose of this memorandum of understanding (MOU) is to establish the Wyoming Community & Practice-Based Research Network (WY CPBRN). The WY CPBRN is a collaborative group comprising different entities…
PaTH to Health Just-In-Time Data Analysis Training Part 1
This lay language training deck, along with its second part , clearly lays out the data analysis process. Part One focuses on observational study limitations and benefits, identifying variables of…
PaTH to Health Just-In-Time Data Analysis Training Part 2
This lay language training deck, along with its first part , clearly lays out the data analysis process. Part Two focuses on statistical testing to explain study data, understanding statstical…
C3FIT "What is 'patient-centeredness' in research?" Training
Developed for educating study teams about Patient-Centered Outcomes Research and the C3FIT study, this slide deck can be viewed as a resource for other teams to learn from.
C3FIT Stakeholder Research Training
This training deck is an example of a lay language presentation that clearly explains study questions, study design, and leadership structure of a PCOR study. It can be used by…
PaTH to Partnership in Stakeholder-Engaged Research Dissemination Brief
This two-pager summarizes a published paper that discusses Engagement on the PaTH study. By providing a lay language brief, this short piece empowers partners to share their experiences with others…
