Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 151 - 175 of 300 results
Family Training Module: Part 3
The University of California San Francisco study team co-created a three-part family training module with their Community Advisory Board and community agencies. The module consists of a facilitation guide and…
Minority Engagement in MS Research Community Partner Toolkit
Accelerated Cure Project and the MS Minority Research Engagement Partnership Network created this toolkit for multiple sclerosis (MS) community partners to increase awareness of the importance of people from all…
NEC Society's 10-Step Guide for an All-In Meeting
This 10-Step Guide to an All-In Meeting, was created by the NEC Society after their NEC Symposium. This framework walks through strategies for academic, scientific, and clinical faculty. Patients and…
Sustainability Toolkit Library
This Patient-Centered Outcomes Research Partnership Sustainability Toolkit created by the Partners in Partnership Sustainability Team and contains resources for best practices for sustainable partnerships. The tools can be used to…
Moving Beyond Population Averages: Patient Principles for a Personalized Medicine Research Agenda Web Forums
Personalized Medicine Coalition convened patients, patient advocates, caregivers, healthcare professionals and academic researchers in a two-year project to develop a patient-centered research agenda identifying evidence gaps that must be filled…
Operation PCOR Veteran Training Modules
Many veterans are living with serious conditions such as posttraumatic stress disorder, chronic pain, and others. This awardee identified an urgent need to explore different treatment options that are acceptable…
Dialysis Research Education Toolkit
The UNC Kidney Center developed this Dialysis Research Education Toolkit aimed at: 1) teaching patients, care partners, and clinic personnel about research, 2) helping researchers work in the dialysis setting…
AAFP TIPS Agenda Setting
Learn the importance of implementing patient visit agenda setting in clinical practice, explore key steps to pre-visit preparation, and identify strategies to effectively discuss and agree on visit priorities for…
Advancing Patient-Centered Cancer Survivorship Care Toolkit
The GW Cancer Center developed the Advancing Patient-Centered Cancer Survivorship Care Toolkit to support training and technical assistance from Comprehensive Cancer Control Programs/Coalitions to health care providers/organizations in order to…
Interactive Meeting Summary
This is the meeting summary for Brain Recovery Project’s Functional Impacts of Large Pediatric Epilepsy Surgeries scientific stakeholder meeting and could be used as a model by teams to create…
Welcome and Introduction to PCOR for CHWs
This is the Welcome and Introduction of a seven-module course, developed by University of Miami Miller School of Medicine. The purpose of the training is to provide community health workers…
Topic 1: What is Research? Patient Centered Outcomes Research?
This is module one of a seven-module course, developed by University of Miami Miller School of Medicine. The purpose of the training is to provide community health workers an overview…
Topic 2: Ethics: What Does it Mean to Conduct Research in an Ethical Way?
This is module two of a seven-module course, developed by University of Miami Miller School of Medicine. The purpose of the training is to provide community health workers an overview…
Topic 3: Study Allocation and Randomization: How to ensure all research participants have equal chances, without bias?
This is module three of a seven-module course, developed by University of Miami Miller School of Medicine. The purpose of the training is to provide community health workers an overview…
Topic 4: Different ways to gather research data
This is module four of a seven-module course, developed by University of Miami Miller School of Medicine. The purpose of the training is to provide community health workers an overview…
Topic 5: How to inform the participants about their rights and risks associated with a study?
This is module five of a seven-module course, developed by University of Miami Miller School of Medicine. The purpose of the training is to provide community health workers an overview…
Topic 6: Following the rules and instructions as part of a team
This is module six of a seven-module course, developed by University of Miami Miller School of Medicine. The purpose of the training is to provide community health workers an overview…
Topic 7: How to report the results of a study and to whom?
This is module seven of a seven-module course, developed by University of Miami Miller School of Medicine. The purpose of the training is to provide community health workers an overview…
Training Module 1: Patient Centeredness and Working Together as a Care Team
This resource provides an outline for conducting an interactive training on patient-centered care with patients, family caregivers, and clinicians. The outline can be used by researchers, clinicians, and patients to…
Training Module 2: How Can We Create New Information Together?
This resource provides an outline for conducting an interactive training on patient-centered care with patients, family caregivers, and clinicians. The outline can be used by researchers, clinicians, and patients to…
"We're basically you!" Video
This video shares the experiences and concerns of adolescents and young adults ages 15 to 39 with cancer care. It was developed as part of an initiative to advance patient-centered…
PCOR Toolkit
This toolkit is designed by El Futuro, Inc. specifically to improve the capacity for and knowledge of patient-centered outcomes research for community behavioral health organizations serving Latinos but could be…
CRITICAL Membership Agreement/Memorandum of Understanding
A Memorandum of Understanding (MOU) between the members of the Coalition for Recovery and Innovation in Traumatic Brain Injury Care Across the Lifespan (CRITICAL). The MOU outlines the agreements made…
Walk On! Patient Advisory Board (PAB) Welcome Packet
An introductory letter to patient advisors on the Walk On! study (Kaiser Foundation Research Institute), this resource provides a study overview and description and outlines the activities of the patient…
COMET DCIS Stakeholder Advisory Board Baseline Survey
A survey developed by the Alliance for Clinical Trials in Oncology Foundation for collecting information from members of a stakeholder advisory board could be used as an example or template…
