Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 1 - 25 of 78 results
2020 PFA Summit on Measure Development: Bringing Patients and Families to the Table
This meeting summary report explores the importance of and opportunities to improve patient and family engagement in measure development to impact health care.
Five-Year Research Agenda on Black Maternal & Child Health
This agenda is the result of a community-centered approach to convene stakeholders across Kansas to develop solutions and improve Black maternal and infant health in the state through training, research…
Toolkit for Digital Health Equity
This toolkit was developed by Massachusetts General Hospital for community partners, researchers, clinicians, and other stakeholders who aim to understand and eliminate barriers to virtual engagement and access to mental…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: GPC
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the Greater Plains Collaborative…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: PaTH
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the PaTH Clinical Research…
Empowering Mothers and Providers and Other Stakeholders to Weigh in as Experts in Research (EMPOWER) Patient-Centered Research Priority Report
This Patient-Centered Research Priority Report provides researchers a prioritized list of patient-centered research questions, leading to meaningful studies for end users. It contains research priorities and questions related to substance…
Empowering Mothers and Providers and Other Stakeholders to Weigh in as Experts in Research (EMPOWER) All-In Meeting Summary
This meeting summary, created by Cincinnati Children's Hospital Medical Center, provides an overview of the methods and results from their four All-In meetings. All stakeholders came together to develop a…
Value Proposition Playbook for Participant-Driven Research in Health Care
This resource is an action-oriented guide developed by and for patient and participant-driven research communities (PDRCs) to sustain their work by demonstrating value to their partners, including their participants and…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: STAR
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the STAR Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: REACHnet
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the REACHnet Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: PEDSnet
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the PEDSnet Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: OneFlorida
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the OneFlorida Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: CAPriCORN
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the CAPriCORN Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: ADVANCE
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the ADVANCE Clinical Research…
Digital Strategies for Returning Value to Research Participants Issue Brief
This issue brief offers a snapshot of the full Digital Strategies for Returning Value to Research Participants report (available here), which examines principles for returning value to research participants and…
Digital Strategies for Returning Value to Research Participants Report
This report examines principles for returning value to research participants and provides examples of digitally based engagement strategies sourced from literature scans and case study interviews from the PCORI-funded Patient/Participant-Driven…
Patient Partner Position Description by REACHnet
In this document, the Research Action for Health Network (REACHnet) Clinical Research Network (CRN) describes the roles and scope of a patient- partner consultant. This resource can be used by…
Patient Engagement Officer Description by the Greater Plains Collaborative
In this document, the Greater Plains Collaborative (GPC) Clinical Research Network (CRN) describes the role of a Patient Engagement Officer (PEO). This resource can be used by researchers and other…
Patient Advisors Description by the Greater Plains Collaborative
The Greater Plains Collaborative (GPC) Clinical Research Network (CRN) describes the role of a Patient Advisors Council (PAC) patient or caregiver member in this template. This resource can be used…
CAPriCORN Patient and Community Advisory Committee (PCAC) Consultation Abstract Form
The Chicago Area Patient-Centered Outcomes Research Network (CAPriCORN) Clinical Research Network (CRN) created this consultation abstract form for researchers to submit their study plans to the CAPriCORN Patient and Community…
Equality State Research Network Charter
The Equality State Research Network (ESRN) works closely with partners across Wyoming to develop and answer research questions relevant to providers, educators, patients, families, and others within local communities. The…
Wyoming Community & Practice-Based Research Network MOU
The purpose of this memorandum of understanding (MOU) is to establish the Wyoming Community & Practice-Based Research Network (WY CPBRN). The WY CPBRN is a collaborative group comprising different entities…
PaTH to Health Just-In-Time Data Analysis Training Part 1
This lay language training deck, along with its second part , clearly lays out the data analysis process. Part One focuses on observational study limitations and benefits, identifying variables of…
PaTH to Health Just-In-Time Data Analysis Training Part 2
This lay language training deck, along with its first part , clearly lays out the data analysis process. Part Two focuses on statistical testing to explain study data, understanding statstical…
C3FIT "What is 'patient-centeredness' in research?" Training
Developed for educating study teams about Patient-Centered Outcomes Research and the C3FIT study, this slide deck can be viewed as a resource for other teams to learn from.
