Engagement Tool and Resource Repository

PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.

Displaying 1 - 25 of 101 results

Research Engagement Guide

This guide outlines patient- and community-centered processes and guidelines to ensure engagement in research and actionable systems change.

A Workbook to Support Community- Engaged Autism Research

This workbook represents an effort to promote collaborative autism research sharing collective experiences with Project STEER (Stakeholders Engaged in Early Intervention Research) including input directly from stakeholders and lessons learned…

Body Mapping Participant Workbook

Body mapping is a biographical tool that leverages creativity to construct personal narratives and visually communicate ideas, experiences, meanings and feelings. The Henry Ford Health System Patient Engaged Research Center…

Project STEER Research Agenda

Project STEER (Stakeholders Engaged in Early Intervention Research) is a collaboration borne out of the efforts of researchers, people with autism, parents and clinicians who have worked together to conduct…

Parkinson’s Foundation PARTner Dissemination Plan

The Parkinson’s Foundation Parkinson’s Advisors in Research and Training (PARTner) pilot project was created to address the lack of comparative effectiveness research in Parkinson’s disease and the need to begin…

PCOR Case Study in Cystic Fibrosis

This case study describes how the cystic fibrosis community successfully built patient-centered outcomes research (PCOR) capacity. It is meant to serve as an illustration for other communities to build PCOR…

The Online Engagement Guide

This guide describes platforms that patient-centered outcomes research teams can use to create an in-person feel when patients, stakeholders, and research partners meet solely online.

Patient-Centered Outcomes Research Training Manual

This training manual provides discrete steps, tools, and resources that patient-centered outcomes research-focused teams can employ to successfully integrate and maintain patient, caregiver, and community partners in research.

Patient Driven Research Community Research Activities

This brief contains important lessons learned from the PCORI-funded Patient/Participant-Driven Research Community Learning Network (PDRC LN) project, which was supported by NORC at the University of Chicago (NORC) and AcademyHealth…

Virtual Community Engagement Tip Sheets

The Maternal Mental Health Research Collaborative generated 11 community engagement memos/tip sheets on how to engage mothers in research through codesign teams. The memo topics were derived from Community Engagement…

What's Happening at PCORI?

The Patient-Centered Outcomes Research Institute sends weekly emails about opportunities to apply for funding, newly funded research studies and engagement projects, results of our funded research, webinars, and other new information posted on our site.

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