Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 26 - 50 of 101 results
PCORnet Engagement Coordinating Center Show & Share Webinar Series: STAR
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the STAR Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: REACHnet
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the REACHnet Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: PEDSnet
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the PEDSnet Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: OneFlorida
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the OneFlorida Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: CAPriCORN
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the CAPriCORN Clinical Research…
PCORnet Engagement Coordinating Center Show & Share Webinar Series: ADVANCE
Part of a series presented by the PCORnet Engagement Coordinating Center to showcase and share the successful engagement approaches of PCORnet networks, this recorded webinar features the ADVANCE Clinical Research…
Digital Strategies for Returning Value to Research Participants Issue Brief
This issue brief offers a snapshot of the full Digital Strategies for Returning Value to Research Participants report (available here), which examines principles for returning value to research participants and…
Digital Strategies for Returning Value to Research Participants Report
This report examines principles for returning value to research participants and provides examples of digitally based engagement strategies sourced from literature scans and case study interviews from the PCORI-funded Patient/Participant-Driven…
Strategies for Improving Patient Representativeness in Research Governance Report
This report examines the significance of and strategies for improving patient representativeness in research governance and provides examples of governance recruitment and retention practices sourced from literature scans and case…
Patient Partner Position Description by REACHnet
In this document, the Research Action for Health Network (REACHnet) Clinical Research Network (CRN) describes the roles and scope of a patient- partner consultant. This resource can be used by…
Patient Engagement Officer Description by the Greater Plains Collaborative
In this document, the Greater Plains Collaborative (GPC) Clinical Research Network (CRN) describes the role of a Patient Engagement Officer (PEO). This resource can be used by researchers and other…
Patient Advisors Description by the Greater Plains Collaborative
The Greater Plains Collaborative (GPC) Clinical Research Network (CRN) describes the role of a Patient Advisors Council (PAC) patient or caregiver member in this template. This resource can be used…
CAPriCORN Patient and Community Advisory Committee (PCAC) Consultation Abstract Form
The Chicago Area Patient-Centered Outcomes Research Network (CAPriCORN) Clinical Research Network (CRN) created this consultation abstract form for researchers to submit their study plans to the CAPriCORN Patient and Community…
PaTH to Health Just-In-Time Data Analysis Training Part 1
This lay language training deck, along with its second part , clearly lays out the data analysis process. Part One focuses on observational study limitations and benefits, identifying variables of…
C3FIT "What is 'patient-centeredness' in research?" Training
Developed for educating study teams about Patient-Centered Outcomes Research and the C3FIT study, this slide deck can be viewed as a resource for other teams to learn from.
PaTH to Partnership in Stakeholder-Engaged Research Dissemination Brief
This two-pager summarizes a published paper that discusses Engagement on the PaTH study. By providing a lay language brief, this short piece empowers partners to share their experiences with others…
CISTO External Advisory Board Charter
This board charter template can be used to help study teams clearly lay out the roles of their advisory boards, bodies or committees. Using the format and content provided in…
PaTH to Health Newsletter
This newsletter by the PaTH study team includes research updates, spotlights on partners and team members, advertisements for study participants and more. It can be viewed by other research teams…
CISTO Year-In-Review Newsletter
The CISTO study team developed this newsletter to highlight the milestones of the first year of the study and preview what is upcoming in the following year. It includes an…
C3FIT Stroke Clinical Site Engagement Committee Meeting Report Back Form Template
This communication tool ensures that recommendations made at local sites are registered and acted upon by both the local study team and the study's steering committee. This tool walks each…
PPRN Resources: Responses to Community Needs and Data Reporting
This resource developed by the DuchenneConnect Network (DCN) Patient-Powered Research Network (PPRN) describes the resources of The Duchenne Registry and Parent Project Muscular Dystrophy’s (PPMD) online platforms. The need for…
Transformational Approaches to Achieving Health Equity through Engaged Research
This slide deck from a webinar by Consuelo H. Wilkins, MD, MSCI, examines components of diversity and provides a review of engaged research approaches needed to address disparities. This information…
Leveraging Social Media to Raise Awareness and Build Community
Social media specialists Joseph M. Coe, MPA, from the PCORnet® Patient-Powered Research Network (PPRN) ArthritisPower (formerly AR-PoWER) and M. Patricia McAdams, MS, from the PCORnet Coordinating Center explore the opportunities…
Stakeholder Contributions to Scientific Manuscripts and a Web-Based Platform for Engaging and Connecting Patients & Caregivers
The PCORnet ® Bariatric Study (PBS) team shares their approach to meaningfully including stakeholders in their study. Specifically, the team discusses their manuscript development process and how they leveraged Smart…
Governance Policy
This is the National Alzheimer's & Dementia Patient- & Caregiver-Powered Research Network (AD-PCPRN) governance policy, which highlights this Patient-Powered Research Network’s (PPRN) governance and operational policies. This document can be…
