Engagement Tool and Resource Repository for Patient-Centered Outcomes Research

PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.

Browse Tools and Resources

Global Healthy Living Foundation

Dissemination Summary Webinar

This is a webinar recording that shares project activities and results of BeTTER SAID, aimed at preparing patients to participate as full partners in research related to the review and selection of arthroplasty implant devices. The webinar could be used as a model for other teams when developing...

University of Miami, Miller School of Medicine

Facilitator Guide

This guide was developed, along with other materials, as part of the Patient-Centered Outcomes Research for Community Health Workers (CHWs) Training Toolkit to educate promotores/CHWs to be stakeholder partners in patient-centered outcomes research. The facilitator’s guide could be used by...

Northwestern University

Home Care Aids Patient-Centered Education and Engagement in Research Training Slides

This slide deck is an accompaniment to the training manual developed by Northwestern University to enable home care aides and their clients to identify health and well-being topics for...

University of Colorado at Denver

Community Board Member Description

A roles and responsibilities description for Community-Based Research Network (CBRN) board members, developed by the University of Colorado at Denver. The role description document includes an overview of the board, benefits of membership to board members, member expectations, and expected...

Family Voices, Inc.

Learning Collaborative Dissemination Plan

This dissemination plan was developed by Family Voices, Inc. to support dissemination of engagement activities and findings throughout the course of the project. The dissemination plan could serve as a model for other teams interested in sharing findings from their engagement work.

Johns Hopkins University

Patient-Centered Research on TBI Psychiatric Problems Presentation

This slide deck was developed by Johns Hopkins University to provide an overview of patient engagement in research, as well as the funded project, in order for potential advisors/partners to determine how they want to be involved in the study. Other teams could use this slide deck as a model for...

National Academy for State Health Policy

The Road to Evidence-Based Decision Making: Steps for Using Research to Inform State Policy (Archived Webinar)

This webinar presented by National Academy for State Health Policy introduces a tool to assist states in incorporating patient-centered outcomes research and comparative effectiveness research into evidence-based policy decisions. Other states and state agencies could use this work as a model to...

National Academy for State Health Policy

Lessons from States on Advancing Evidence-based State Health Policymaking for the Effective Stewardship of Healthcare Resources

This is a summary of the outcomes of a 20-month learning collaborative developed by National Academy for State Health Policy, in which three states focused on developing processes for evidence-based health policy making with a specific focus on patient-centered outcomes research and comparative...

American College of Physicians

CER Webinar Slides

This slide deck from a webinar by the American College of Physicians provides an overview of a survey conducted among primary care physicians to assess physician opinions and knowledge of comparative effectiveness research. The webinar could be used by other teams working with primary care...

Illinois Institute of Technology

Project Website

This web site provides an overview of the Training and Development to Engage African-American Patients with Mental Illness as Research Leaders project. The web page provides access to project materials, including a training curriculum for research leaders, a trainer’s manual for conducting...