Engagement Tool and Resource Repository

PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.

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Kaiser Permanente Washington Health Research Institute

Scientific Writing Lay Guide

The PCORnet^® Bariatric Study (PBS) developed this scientific writing lay guide to provide an overview of the general scientific manuscript writing process. The guide can be shared with nonscientific stakeholders to gain a better understanding of the various nuances of manuscript...

Kaiser Foundation Research Institute

Governance Document

This document by the Patient Outcomes Research to Advance Learning (PORTAL) Clinical Research Network (CRN) provides an overview of their governance structure, including the approach to decision making, data governance, data privacy, conflicts of interest, and scientific misconduct. Researchers...

Kaiser Foundation Research Institute

Patient Engagement Toolkit

The Patient Outcomes Research to Advance Learning (PORTAL) Clinical Research Network (CRN) created this toolkit to support researchers who want to engage with patients in conducting research. This toolkit includes information and materials on how to recruit and train patient partners, offering...

Louisiana Public Health Institute

Health in Our Hands Clinic Manual

This document created by Research Action for Health Network (REACHnet) Clinical Research Network (CRN) provides an overview of their Health in Our Hands initiative, which provides a platform for patient involvement in all aspects of the research process. This manual can be used by researchers to...

Louisiana Public Health Institute

Accelerating Clinical Knowledge Generation and Use

In this presentation, Tom Carton, PhD, MS, from Research Action for Health Network (REACHnet) Clinical Research Network (CRN) discusses the process the network used to convene a multi-stakeholder group to identify research priorities among health system leaders. Researchers and other...

Louisiana Public Health Institute

Engagement Policy

The Research Action for Health Network (REACHnet) Clinical Research Network (CRN) has developed a comprehensive Engagement Policy to advance the mission of PCORI to meaningfully engage patient and other stakeholders in the research process. This document can serve as guidance for stakeholders...

Louisiana Public Health Institute

360 Engagement Assessment

Research Action for Health Network (REACHnet) Clinical Research Network (CRN) developed the 360 Engagement Assessment to identify strengths and opportunities to improve bidirectional relationships between stakeholder groups and the study team. Others can use this document to guide the engagement...

Harvard Pilgrim Health Care

Advancing the Science of Community Engaged Research

The PCORnet^® Obesity Antibiotics Study (ABX) surveyed their Executive Antibiotics Stakeholder Advisory Group (EASAG) to evaluate their involvement and participation in the study. This document can be used to inform stakeholder inclusion in scientific studies, sustain engagement, and...

Harvard Pilgrim Health Care

Lay Study Guide

This document provides an overview of the PCORnet^® Obesity Antibiotics Study (ABX) in plain, easy-to-understand language. The guide includes an overview of the study process; explains the goals and aims of the project; and lays out details about stakeholder engagement and the use,...

Harvard Pilgrim Health Care

Stakeholder Engagement in Studies Toolkit

The Executive Antibiotics Stakeholder Advisory Group (EASAG) for the PCORnet^® Obesity Antibiotics Study (ABX) developed this collection of stakeholder engagement tools. The toolkit includes an engagement checklist, Memorandum of Understanding (MOU) template, and stakeholder feedback...