Engagement Tool and Resource Repository
PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.
Displaying 101 - 125 of 415 results
CISTO Year-In-Review Newsletter
The CISTO study team developed this newsletter to highlight the milestones of the first year of the study and preview what is upcoming in the following year. It includes an…
C3FIT Stroke Clinical Site Engagement Committee Meeting Report Template
This communication tool guides conversations between local sites and their partners while also creating a short report that can be shared with the governance team. This resource will help plan…
SHIELD Patient and Caregiver Partner Recruitment Flyer
This recruitment flyer provides multiple entry points for possible study partners, from links to surveys to direct contact information. It will help partners find study teams and study teams find…
The SEED Method's Patient Stakeholder Identification Matrix
This recruitment strategy spreadsheet was created to help study teams identify and select possible individual and organizational partners. It can also serve as a template for managing engagement over the…
The SEED Method Complete Toolkit
This toolkit was specifically designed to improve stakeholder recruitment, selection and engagement. This comprehensive document includes an overview of the SEED Method, instructions, example documents – including timelines, meeting agendas…
PaTH to Health Just-In-Time Study Results and Dissemination Training
This training deck lays out the multiple channels through which data can be disseminated once it has been collected and analyzed. This deck could help study teams explain the dissemination…
"How the PAC is Making a Difference" Template
This communication tool clearly represents the positive impacts that partners have on studies. It guides users to lay out the topic, input and impact of engagement with stakeholders. This resource…
STAMP Patient Family Advisory Committee Meeting Agenda
This meeting agenda example provides both a template and suggested topics for a Patient and Family Advisory Committee meeting. It can be viewed to develop communication strategies and planning discussions.
Reach PC Stakeholder Engagement Log
This communication tool tracks touches with stakeholder partners. It will allow your research team to build strong relationships with partners by ensuring timely and clear communication. It lays out both…
C3FIT Stroke Clinical Site Engagement Committee Meeting Report Back Form Template
This communication tool ensures that recommendations made at local sites are registered and acted upon by both the local study team and the study's steering committee. This tool walks each…
STAMP Stakeholder Advisory Committee Meeting Agenda
This meeting agenda example provides both a template and suggested topics for a Stakeholder Advisory Committee meeting. It can be viewed to develop communication strategies and planning discussions.
Patient Engagement Toolkit
The Patient Outcomes Research to Advance Learning (PORTAL) Clinical Research Network (CRN) created this toolkit to support researchers who want to engage with patients in conducting research. This toolkit includes…
Health in Our Hands Clinic Manual
This document created by Research Action for Health Network (REACHnet) Clinical Research Network (CRN) provides an overview of their Health in Our Hands initiative, which provides a platform for patient…
Governance Document
This document by the Patient Outcomes Research to Advance Learning (PORTAL) Clinical Research Network (CRN) provides an overview of their governance structure, including the approach to decision making, data governance…
Smart Patients Dissemination Packet
This dissemination packet by the PCORnet ® Bariatric Study (PBS) provides information on how the team engaged patients by partnering with Smart Patients, an online community of more than 10,000…
Accelerating Clinical Knowledge Generation and Use
In this presentation, Tom Carton, PhD, MS, from Research Action for Health Network (REACHnet) Clinical Research Network (CRN) discusses the process the network used to convene a multi-stakeholder group to…
Engagement Policy
The Research Action for Health Network (REACHnet) Clinical Research Network (CRN) has developed a comprehensive Engagement Policy to advance the mission of PCORI to meaningfully engage patient and other stakeholders…
Engagement Plan
This document by the PCORnet ® Bariatric Study (PBS) provides an overview of the study's Engagement Plan, including information about the study’s engagement efforts. This document can serve as a…
Scientific Writing Lay Guide
The PCORnet ® Bariatric Study (PBS) developed this scientific writing lay guide to provide an overview of the general scientific manuscript writing process. The guide can be shared with nonscientific…
360 Engagement Assessment
Research Action for Health Network (REACHnet) Clinical Research Network (CRN) developed the 360 Engagement Assessment to identify strengths and opportunities to improve bidirectional relationships between stakeholder groups and the study…
Advancing the Science of Community Engaged Research
The PCORnet ® Obesity Antibiotics Study (ABX) surveyed their Executive Antibiotics Stakeholder Advisory Group (EASAG) to evaluate their involvement and participation in the study. This document can be used to…
PaTH to Health Diabetes Study: Postcards and Digital Newsletters
The PaTH Clinical Research Network (CRN) created these promotional postcards to be distributed to primary care providers, patient partners, and stakeholders to increase their exposure to PaTH's free biannual digital…
Collecting Community Stories: The MyPaTH Story Booth Toolkit
The PaTH Clinical Research Network (CRN) designed this toolkit to help collect rich and meaningful stories from communities. Materials in this toolkit include sample flyers, brochures, and interview prompts. This…
Stakeholder Engagement in Studies Toolkit
The Executive Antibiotics Stakeholder Advisory Group (EASAG) for the PCORnet ® Obesity Antibiotics Study (ABX) developed this collection of stakeholder engagement tools. The toolkit includes an engagement checklist, Memorandum of…
PaTH: How EHR Data is Collected and Protected via a Chocolate-Making Analogy
The PaTH Clinical Research Network (CRN) developed this whiteboard video and accompanying visual guide to explain how electronic health record (EHR) data is captured, protected, and utilized for research purposes…
