Engagement Tool and Resource Repository

PCORI is committed to advancing patient-centered, stakeholder-engaged research and the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders throughout the entire research process. We do this to ensure that the results of the studies we fund are relevant, trustworthy, and more likely to be used in practice. PCORI also supports the uptake of engagement practices and methodologies within the broader healthcare research community. To encourage the spread of these practices, we have assembled a repository of engagement-related tools and resources developed and used by PCORI awardees. This searchable peer-to-peer repository includes resources that can inform future work in PCOR and was developed based on a process, which you can learn more about here.

Browse Tools and Resources

OCHIN ADVANCE Collaborative

OCHIN-ADVANCE engagement core values functions and metrics

The Accelerating Data Value Across a National Community Health Center (ADVANCE) Clinical Research Network (CRN) outlined its priorities and metrics for engagement across patient and caregiver groups in this snapshot. This resource can be used by researchers and other stakeholder groups seeking...

Research Action for Health Network (REACHnet)

Agenda Template by REACHnet

This agenda template was developed by the Research Action for Health Network (REACHnet). It was created with patient stakeholders’ input for use during study meetings that include stakeholders, such as patients, clinicians, and/or payers, to overcome some common challenges stakeholders face...

National Health Council

Value Classroom

This virtual Value Classroom created by the National Health Council features tools and resources for understanding value in health care and value assessment. Resources are intended to help patients and patient advocates engage in discussions on the assessment of value.

National Health Council

Increasing Patient-Community Capacity to Engage on Quality of Health Care Educational Series

This six-module online educational series developed by the National Health Council addresses why quality is important in the current healthcare environment and how patients and patient organizations can be strong advocates for quality and engage in quality programs and measurement.

Brandeis University

Community Engagement Studio Toolkit

The toolkit builds on the Community Engagement Studio (CES) model and toolkit developed by the Meharry-Vanderbilt Community Engaged Research Core (CERC). The Maternal Mental Health Research Collaborative (MMHRC) tailored the model for researchers and community experts interested in maternal...

Fred Hutchinson Cancer Research Center

HICOR Patient Engagement Plan

The Hutchinson Institute for Cancer Outcomes Research (HICOR) Patient Engagement Plan 2020 was created to develop a patient engagement plan which effectively integrates patient partners in research aimed at improving cancer care delivery in community settings. This patient engagement plan can be...

Pediatric Dermatology Research Alliance

Pediatric Dermatology Research Alliance (PeDRA) Webinars for Researchers, Clinicians, and Patients

This website provides access to archived webinars conducted by the Pediatric Dermatology Research Alliance (PeDRA) on education for researchers, patients, and families. These recorded webinars provide educational material to help viewers understand clinical research and the importance of patient...

The Children's Hospital of Pennsylvania

PASS Study Partnership Charter

The PASS Study's Partnership Charter lays out study information as well as specifics on engagement like the partnership's structure, members, principles and activities. This charter could be used as an example for other study teams to follow when outlining the details of an advisory board.

Kaiser Foundation Research Institute

Training and Engaging Patients in Research Data Analysis Presentation

This presentation describes the engagement strategies used by the ACTIVATE study team to train their patient partners in data analysis. It includes useful information and resources that could be used by other study teams that are in interested in training lay-person partners on the basics of...

Dartmouth-Hitchcock Clinic

National & Local Statements of Work Template

These Statements of Work for the national and local stakeholder committees lay out important project information, partnership values, partner responsibilities, and important logistical information such as compensation processes. This Statement of Work could serve as a template or an example for...