Strict, lifelong infection-control policies restrict in-person contact to avoid the spread of bacteria between people with cystic fibrosis (CF). Based on the experience and knowledge of people with CF, this Best Practices User Guide for online engagement seeks to assist patient-centered outcomes research (PCOR) teams with choosing the right platforms engaging solely online.

Disclaimer: This tool was developed and provided by a third party. Opinions and information in this content are those of the third party and do not necessarily represent the views of PCORI. Accordingly, PCORI cannot make any guarantees with respect to the accuracy or reliability of the information and data in this content.