Patient-Centered Outcomes Research Institute Will Host National Workshop to Advance Use of Electronic Data

PCORI convened a select group of researchers and thought leaders for the “National Workshop to Advance the Use of Electronic Data in Patient-Centered Outcomes Research,” July 2-3, in Palo Alto, Calif. The two-day workshop focused on developing ideas for how PCORI can facilitate the creation or function of a national data infrastructure to support high quality patient-centered outcomes research. The webcast began at 8:00 a.m. PT (11:00 ET)

Meeting Materials

• Agenda

Presentations

• What Are We Looking For? – Joe Selby, MD, MPH, Executive Director, PCORI
• A Vision for a National Research Network – Francis Collins, MD, PhD, Director, National Institutes of Health, Member, PCORI Board of Governors
• Survey of the Landscape – Governmental, NGO, Methodological Perspectives – Erin Holve, MPH, MPP, PhD, Director of Research and Education in HSR, Academy Health
• Survey of the Landscape – Governmental, NGO, Methodological Perspectives – Lucila Ohno-Machado, MD, PhD, Chief of the Division of Biomedical Informatics, Associate Dean for Informatics and Technology, University of California, San Diego

Lessons From The Field Part I

• HMO Research Network (HMORN) – Eric Larson, MACP, MD, MPH, Executive Director, Group Health Research Institute
• Sentinel – Patrick Archdeacon, MD, Medical Officer, Food and Drug Administration
• Response – Richard Platt, MD, MSc, Director Harvard Pilgrim, Healthcare/DEcIDE Network, HMO

Lessons From The Field Part II

• DARTNet – David West, PhD, Director Colorado Health Outcomes
• SCANNER – Michele Day, PhD, Program Manager, SCANNER

Lessons From The Field Part III

• C3N – Peter Margolis, MD, PhD, Co-Director, Center for Health Care Quality, Director of Research, James M. Anderson Center, Cincinnati Children’s Hospital
• Registry of Registries – Rich Gliklich , MD, President, Quintiles Outcomes
• Charting the Course – Exploring Top Proposals from Poster Sessions – Harlan Krumholz, MD, Harold H. Hines Jr. Professor of Medicine, Yale University School of Medicine, Member, PCORI Board of Governors

Video