While patients are more involved than ever in creating and managing their health data, how can we get them involved in actively shaping the research that affects their care? The Health Datapalooza session "Engaging Patients in Research and Tool Development," addressed those concerns.
Executive Director Joe Selby discussed two PCORI funding opportunities aimed at highlighting the value of shared patients' clinical data with research groups towards the greater goal of improving health outcomes.
The Eliza Corporation also presented recent survey findings, which shine light on how Americans are engaging with their health, particularly online. Panelists discussed how consumers interact with their health data and explore strategies to get consumers involved in research.
- Bray Patrick-Lake
Director of Stakeholder Engagement, Clinical Trials Transformation Initiative (CTTI)
- Alexandra Drane
Founder, Chief Visionary Officer and Chair of the Board, Eliza Corporation
- Joe Selby
Executive Director, Patient-Centered Outcomes Research Institute (PCORI) (presentation materials)