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|Stephanie Buxhoeveden delivers the opening keynote address after an introduction by PCORI Executive Director Joe Selby, MD, MPH|
Our opening plenary session put the voices of patients, caregivers, and their advocates front and center in a discussion of why their needs and values matter in health research and decision making. Stephanie Buxhoeveden, MSN, FNP-BC, MSCN, our opening keynote speaker, shared her story of being first a clinician and then a patient with multiple sclerosis. She also described the importance of patient involvement in guiding health research. The plenary panel then discussed changes that have been made -- and still need to be made -- in health research and delivery to be sure studies and outcomes that matter to patients become the rule rather than the exception.
Keynote: Stephanie Buxhoeveden, MSN, FNP-BC, MSCN
Moderator: Harlan Krumholz, MD, SM
Panelists: John A. Schall, MPP; Andrew Sperling, JD, MA; Valarie Worthy, MSN, RN; Neely M. Williams, MDiv; Sergio Sanchez