PCORI and UsAgainstAlzheimer's Briefing on Alzheimer's Disease Research with a Focus on Caregivers

Date:
  • -
Location:

Dirksen Senate Office Building, U.S. Senate Committee on Health, Education, Labor, and Pensions Hearing Room (SD-430), Washington, DC, United States

PCORI and UsAgainstAlzheimer's conducted a joint briefing on Alzheimer’s disease research with a focus on caregivers.

Guided by patients, caregivers and other stakeholders, PCORI funds research designed to provide patients and caregivers in care decisions, evaluating treatment options, and improving care delivery.

Presented with UsAgainstAlzheimer’s, a partner in PCORI’s National Alzheimer’s & Dementia Patient & Caregiver-Powered Research Network, the briefing was designed to:

  • Raise awareness of caregivers’ needs and the outcomes important to them and the patients for whom they care
  • Highlight PCORI’s research to address those outcomes
  • Provide healthcare professionals and advocates an opportunity to discuss where more research is needed

Speakers

  • Meryl Comer
    Co-Principal Investigator, National Alzheimer’s & Dementia Patient & Caregiver-Powered Research Network, and UsAgainstAlzheimer’s Board Lead; President, Geoffrey Beene Foundation
  • Gail Hunt
    Board Member, Patient-Centered Outcomes Research Institute; President and CEO, National Alliance for Caregiving
  • Natalia Loskutova, MD, PhD
    Director of Evaluation, The American Academy of Family Physicians National Research Network (AAFP NRN) 
  • Senator Edward Markey (D-MA)
  • Eleanor M. Perfetto, PhD, MS
    Senior Vice President, Strategic Initiatives, National Health Council
  • Ronald C. Petersen, MD, PhD
    Director, Mayo Alzheimer’s Disease Research Center; Professor of Neurology, Mayo Clinic College of Medicine; Principal Investigator, National Alzheimer’s & Dementia Patient & Caregiver-Powered Research Network
  • Jean Slutsky, PA, MSPH
    Chief Engagement and Dissemination Officer and Program Director, Communication and Dissemination Research, Patient-Centered Outcomes Research Institute
  • George Vradenburg
    Chairman and Founding Board Member, UsAgainstAlzheimers

Meeting Materials

 

For questions about the briefing or PCORI’s work on Alzheimer's disease, please contact:
Eliza Lanser: 202-370-9481 or [email protected]