The Patient-Centered Outcomes Research Institute (PCORI) hosted a webinar to provide information and answer questions about research partnerships that include patients with serious acute or medically complex conditions, as additional planning may be necessary.
This webinar helped participants consider ideas to support successful preparation and engagement processes throughout the project. Researchers and patient partners presented their experiences and lessons learned. This information was presented to help patients and researchers engaging in patient-centered outcomes research have a more positive experience.
- Dr. Tilicia Mayo-Gamble, Vanderbilt University
- Dr. Velma Murry, Vanderbilt University
- Mrs. Mary Bentley LaMar, The Sickle Cell Association of New Jersey
- Mr. Ronnie Sharpe, CysticLife