In 2014, the Patient Centered Outcomes Research Institute (PCORI) invested more than $250 million in the development of PCORnet: The National Patient-Centered Clinical Research Network. PCORnet is a large, highly representative, national “network of networks” that collects data routinely gathered in a variety of healthcare settings, including hospitals, doctors’ offices, and community clinics. The mission of PCORnet is to enable people to make informed healthcare decisions by efficiently conducting clinical research relevant to their needs. During this webinar, you will hear from one of our Program Officers who works closely with PCORnet and one of our Ambassadors and Engagement Awardees who is the Research Coordinator for the Arthritis Patient-Powered Research Network (PPRN), ArthritisPower, within PCORnet.
At the conclusion of this webinar, participants should:
- Understand the basics of PCORnet and the work of Patient-Powered Research Networks (PPRNs) and Clinical Data Research Networks (CDRNs)
- Understand how to get involved in PCORnet
- Maryan Zirkle, MD, MS, MA
PCORI Program Officer, Research Infrastructure
- Shilpa Venkatachalam, PhD, MPH
PCORI Ambassador, Engagement Awardee, Research Coordinator for the ArthritisPower PPRN, including the Autoimmune and Systemic Inflammatory Syndromes Collaborative Research Group (ASIS CRG)