This session provided an overview of PCORI’s significant investments in stakeholder-driven, patient-centered, comparative effectiveness research aimed at reducing the illness burden experienced by patients with advanced illnesses and their caregivers. The session also highlighted recent findings from two PCORI-funded clinical trials, the first focused on facilitating discussions about the goals of care and the second on delivery of palliative care services for patients with Parkinson’s disease.

Session Materials:


J. Randall Curtis, MD, MPH
A. Bruce Montgomery–American Lung Association Endowed Chair in Pulmonary and Critical Care Medicine
University of Washington
Presentation Slides | PCORI-funded Research Project

Benzi Kluger, MD, MS
Professor of Neurology and Founder and Chief, Neuropalliative Care Section
University of Colorado Denver
Presentation Slides | PCORI-funded Research Project


Neeraj Arora, PhD
Associate Director, Science

Amy Berman, RN
Senior Program Officer
The John A. Hartford Foundation


Megan Feeney, MPH
Senior Manager, Community Engagement
Parkinson's Foundation​
PCORI-funded Engagement Award

William Novelli, MA
Professor, McDonough School of Business
Georgetown University
Presentation Slides

This session was eligible for continuing education credit.


Location Type