2019 PCORI Annual Meeting Breakout Session - Improving Healthcare Equity through Engagement, Patient-Centered Outcomes Research & Practice Change

Populations most at risk for disparities are often underserved and unable to receive equitable care, resulting in worse health and healthcare outcomes. As such, improving healthcare equity is critical to addressing overall healthcare quality and improving patient outcomes. This breakout session at the 2019 PCORI Annual meeting will highlight PCORI-funded projects focused on diverse populations, including racial/ethnic minorities, LGBTQ members, and individuals with disabilities. Presenters will discuss successes and challenges in engaging their targeted communities, key study results, and lessons learned from conducting patient-centered outcomes research. This breakout session will highlight how addressing the social determinants of health can help improve healthcare equity and conclude with discussions on how to use research results to change policy and practice.

Session Transcript

Moderator

Nadine Barrett, PhD, MA, MS
Director, Office of Health Equity and Disparities and Assistant Professor
Duke Cancer Institute

​Speakers

Sari Reisner, ScD
Director of Transgender Health Research, The Fenway Institute at Fenway Health
Assistant Professor of Pediatrics, Harvard Medical School and Boston Children's Hospital
Understanding How Gender Affirmation Therapies Affect HIV-Related Health for Transgender Adults
Presentation Slides

​Dana Pardee
Director of Epidemiology Projects
The Fenway Institute at Fenway Health

​Carolyn Tucker, PhD
UF Florida Blue Endowed Chair in Health Disparities Research
University of Florida
Do Black Women with Obesity Lose Weight and Keep the Weight Off when Offered Culturally Sensitive Treatment Programs?
Presentation Slides

​Mildred Fox
Patient Representative

​Jeanhee Chung, MD
Instructor in Medicine
Massachusetts General Hospital
Helping Families Get Health Screening Recommendations for Patients with Down Syndrome
Presentation Slides

​Sandra Baker
Director of Operations and Family Support
Down Syndrome Association of Los Angeles

​Discussant

Ignatius Bau, JD
Health Policy Consultant

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