A hallmark of PCORI’s work has been the engagement of the public and patients in clinical comparative effectiveness research. This breakout session at the 2019 PCORI Annual Meeting features experienced patient partners who have participated in a range of research studies and engagement efforts. Panelists share their experiences and provide practical advice for researchers and engagement coordinators on ways to operationalize engagement and build constructive relationships and teams. For patient partners, the panel offers advice on applying personal experience to the design and implementation of a research study.

Session Transcript

Moderator

Alan Richmond, MSW
Executive Director
Community-Campus Partnerships for Health
Presentation Slides

Speakers

Martha Carnie
Senior Patient Advisor; Co-Chair of Patient and Family Advisory Council Steering Committee
Brigham and Women's Hospital
Preventing Serious Falls Among Older Adults: A Project Supported by PCORI and the National Institute on Aging of the National Institutes of Health -- The STRIDE Study
Presentation Slides

Sonya Ballentine
Peer Researcher
Illinois Institute of Technology College of Psychology
Community-Based Participatory Research (CBPR) for African-American Patients with Serious Mental Illness
Presentation Slides

Peter Thomas, JD
Principal
Powers Pyles Sutter & Verville PC
Does Care Management Help Patients Recover from a Serious Injury? (2013)
Comparing Two Ways to Coordinate Care for Patients after Trauma (2017)
Presentation Slides

Discussant

Marizen Ramirez, PhD, MPH
Associate Professor, Division of Environmental Health Sciences
University of Minnesota School of Public Health
Comparing Two Approaches to Help Parents Support Their Children's Social and Emotional Recovery after a Serious Accidental Injury
Presentation Slides


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