2020 PCORI Virtual Annual Meeting Breakout Session

Caregivers are integral members of older adults’ care teams and play a central role in patient-centered care. Stakeholders have called for patient-centered healthcare research that also adopts a family-centered approach—assessing caregiver outcomes, perspectives, and involvement in patient care. This session will feature a brief overview of the PCORI funding portfolio of research focused on older adults that is family-centered and the funded studies that assess caregiver-related outcomes and involve caregivers in the interventions. That overview will be followed by a robust discussion with stakeholders and PCORI-funded investigators on the areas of importance for directing future clinical comparative effectiveness research.

Moderator

Gail Hunt
Board of Governors
President and CEO
National Alliance for Caregiving

Speakers and Stakeholder Partners

Carly Khan, PhD, MPH, RN
Program Officer, Healthcare Delivery and Disparities Research
Patient-Centered Outcomes Research Institute

Sindhura Gummi, MPH
Senior Program Associate, Healthcare Delivery and Disparities Research
Patient-Centered Outcomes Research Institute

Carole White, PhD, RN, FAAN
Professor
Nancy Smith Hurd Chair in Geriatric Nursing and Aging Studies
UT Health San Antonio
Stakeholder Alliance for Better Palliative Care for People with Dementia and their Caregivers

Sheran Rivette
Family Caregiver Specialist
UT Health San Antonio

Discussants

Rachelle Faublas, MBA
Director 
SoFIACare South Florida Institute on Aging (SoFIA)

Susan Reinhard, PhD, RN, MS, FAAN
Senior Vice President
AARP

John Schall, MPP
Chief Executive Officer
Caregiver Action Network

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