2021 PCORI Virtual Annual Meeting: Being Counted -- Collecting Sexual Orientation and Gender Identity Data to Reduce Health Disparities

2021 PCORI Virtual Annual Meeting Breakout Session

Sexual and gender minorities, comprising lesbian, gay, bisexual, transgender, and queer individuals, make up roughly 4.5 percent of the US population. It is only recently, however, that health disparities experienced by these populations have received greater attention. Sexual orientation and gender identity (SOGI) form an important dimension of an individual’s self-perception and behavior and if a patient’s SOGI status is unknown, relevant therapeutic or preventive services may not be recommended. Federal, state, and local entities have rarely collected patient SOGI status, leaving researchers largely uninformed of disease prevalence and intervention efficacy within these populations. This session brings together researchers and funders to describe their experience with and best practices for collecting SOGI data and why it is a vital piece of demographic information.

Participants (Moderators and Discussants)

Adil Haider
Dean and Professor of Surgery and Community Health Sciences
Aga Khan University Medical College

Kenneth Mayer
Prof. of Medicine, Harvard Medical School
Medical Research Director, The Fenway Institute

Karen Parker
Director, Sexual & Gender Minority Research Office
Division of Program Coordination, Planning, and Strategic Initiatives, Office of the Director, NIH

Brendan Weintraub
Program Associate II
Patient-Centered Outcomes Research Institute (PCORI)

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