2021 PCORI Virtual Annual Meeting Breakout Session

The COVID-19 pandemic has been devastating to vulnerable older adults in the United States, with higher death rates specifically for those living with dementia. Within our fragmented healthcare system, patients, caregivers, and clinicians were ill-equipped to handle challenges exacerbated by COVID-19. Among the challenges are reduced ability to access community-based services, caregiver resources, personal protective equipment, and quality care. This session will offer a brief overview of these challenges, with a focus on health disparities. Attendees will glean insights from individuals in the field who have faced obstacles in engaging stakeholders and implementing research and consider areas of importance for future patient-centered outcomes research responsive to this population’s unique COVID-19 challenges.

Participants (Moderators and Discussants)

Jonathan Jackson
Executive Director, CARE Research Center
Massachusetts General Hospital and Harvard Medical School

Natalie Leland
Associate Prof., Department of Occupational Therapy
School of Health and Rehabilitation Sciences, University of Pittsburgh

Tabassum Majid
Program Officer, Healthcare Delivery and Disparities Research (HDDR)
Patient-Centered Outcomes Research Institute (PCORI)

Sara Masoud
Community Outreach Coordinator
University of Texas Health Science Center at San Antonio

Jason Resendez
Executive Director
UsAgainstAlzheimer’s Center for Brain Health Equity

Heather Snyder
Vice President, Medical and Scientific Relations
Alzheimer’s Association

Scott Townsley
Managing Principal, Trilogy Consulting, LLC; Former Prof. of the Practice, UMBC Erickson School of Aging Studies Chair, Advisory Committee - UMass Boston Management of Aging Service

Brian van Buren
Patient Advocate

Kate Boyd
Program Officer, Eugene Washington Engagement Awards
Patient-Centered Outcomes Research Institute (PCORI)

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