This is Part 2 of a two-part series of convenings to explore ways in which the data infrastructure for PCORnet®, the National Patient-Centered Clinical Research Network, might be enhanced. [View Part 1]

This webinar explored ways in which the PCORnet data infrastructure might be enhanced. This patient reported outcomes (PROs)- and other patient generated health data (PGHD)-focused webinar:

  1. Discussed the current state of PRO data and PGHD collection by PCORnet Network Partners
  2. Discussed opportunities to improve accessibility and quality of PRO data within the PCORnet data infrastructure
  3. Engaged stakeholders on short-term and long-term infrastructure priorities to expand PRO data availability

Questions or comments can be directed to [email protected].

NORC Event Page View Agenda

Meeting Materials

Featured Speakers

  • Justin Bachmann, MD, MPH:
    Investigator, STAR; Assistant Professor, Biomedical Informatics, Vanderbilt University Medical Center
  • L. Charles Bailey, MD, PhD:
    Director, Data Coordinating Center, Children’s Hospital of Philadelphia (PEDSnet); Associate Professor, Clinical Pediatrics, University of Pennsylvania
  • Elizabeth Austin, MPH:
    Research Scientist, Health Systems and Population Health, University of Washington
  • Daniella Meeker, PhD:
    Associate Professor, Population and Public Health Sciences, University of Southern California Keck School of Medicine
  • Mark Pletcher, MD, MPH:
    Director, Informatics and Research Innovation, Clinical & Translational Science Institute, University of California San Francisco


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