The PCORI Methodology Committee held a public workshop to discuss methodological issues encountered in research evaluating the effects of interventions for children and adults with intellectual and developmental disabilities (IDD). As the Methodology Committee is charged with setting standards for PCORI-funded research, the discussion during this workshop helps inform efforts to optimize the design of IDD research funded by PCORI.
The focus of the workshop was on the methodologic issues encountered in the design, conduct, and analyses of IDD research. The workshop featured a combination of expert talks and panel discussions thematically grouped into three areas:
- Topic 1. Measurement issues
- Topic 2. Issues in observational and interventional designs (including infrastructure needs and implementation science)
- Topic 3. Heterogeneity (conditions, treatments, and effects, including disparities)
The workshop did not address the prioritization of conditions, interventions, or research questions.
We heard from experts in government, academia, and the private sector from many scientific fields involved in the design or evaluation of IDD research.