Ableism is rooted in the assumption that people living without a disability are the ideal. Improving our knowledge of the term, disability can reduce stereotypes and stigma and improve disability inclusion in comparative clinical effectiveness research. In this session, we drew on the insights from three PCORI awardees to discuss how these considerations helped inform research design and disability inclusion in clinical trials. One project featured a Truth and Reconciliation resource on building trust between researchers and people with disabilities. Another project described efforts to create and disseminate an accessible research ethics training program that can be adopted by teams in collaboration with people with intellectual disabilities. Finally, the Disability Equity Collaborative described their efforts to provide evidence-based knowledge and practical solutions to address complex problems in disability access in healthcare.

Presentation Slides

Speakers

Breakout Speaker
Headshot of Tawara Goode

Tawara Goode, M.A.

  • Associate Professor and Director, Georgetown University National Center for Cultural Competence, Director, Georgetown University Center for Excellence in Developmental Disabilities
Breakout Speaker

Stephanie DeLuca, Ph.D.

  • Policy Advisor, Office of Sen. Tammy Duckworth
Breakout Speaker

Lisa Iezzoni, M.D., MSc

  • Professor of Medicine, Harvard Medical School; Health Policy Research Center, Mongan Institute, Massachusetts General Hospital
Breakout Speaker

Katherine McDonald, Ph.D.

  • Professor, Public Health Associate Dean of Research, Falk College Syracuse University
Session Moderator

Megan Morris, Ph.D., MPH

  • Associate Professor in the Division of General Internal Medicine at the University of Colorado School of Medicine. Founder and Director of the Disability Equity Collaborative

Tags

Health Conditions Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Populations Populations PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders. View Glossary