PCORI is committed to long-term funding of patient-centered research in intellectual and developmental disabilities (IDD). Individuals with IDD are disproportionately impacted by high disease burden and tremendous barriers to care, especially as it relates to mental health and wellness. This session highlighted the spectrum of PCORI’s funded research—from engagement to comparative clinical effectiveness research to dissemination and implementation—aimed at improving mental health in individuals with IDD and the vital role of patient partners in this work. The session included presentations from PCORI-funded investigators and patient partners, followed by a moderated discussion and audience Q&A.

Presentation Slides


Session Moderator

William Bennett, M.D.

  • Associate Professor of Pediatrics, Department of Pediatrics, Indiana University School of Medicine Scientific Director, Patient Engagement Core, Indiana CTSI
Breakout Speaker

Laura Grofer Klinger, Ph.D.

  • Associate Professor, Department of Psychiatry, University of North Carolina at Chapel Hill; Executive Director, UNC TEACCH Autism Program

Lauren Kenworthy, Ph.D.

  • Chief, Pediatric Neuropsychology Division Director, Center for Autism Children’s National Hospital Professor, Pediatrics, Neurology, Psychiatry George Washington University Medical School
Breakout Speaker

Jessica Kramer, Ph.D., OTR/L, FAAIDD

  • Associate Professor, University of Florida
Breakout Speaker

Megan Leimkuhler, MPH

  • Program Associate, Clinical Effectiveness and Decision Science Program, PCORI
Breakout Speaker

Destiny Watkins

  • Self-Advocate, DoTerra Wellness Advocate


Health Conditions Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Populations Populations PCORI is interested in research that seeks to better understand how different clinical and health system options work for different people. These populations are frequently studied in our portfolio or identified as being of interest by our stakeholders. View Glossary