About 21 million people in the United States exhibit long COVID symptoms resulting in reduced quality of life, diminished productivity, and further exacerbating health disparities. This session highlighted ways stakeholder engagement is driving patient-centered long COVID care, including innovative ways patients have been engaged in research, emerging therapies and symptom management strategies, as well as the impact of novel health system models and care delivery methods to address long COVID. In addition to discussions that drew insights from two current ongoing/recently completed PCORI-funded projects identifying promising areas of future research, panel discussions included both patient and provider perspectives on the management of long COVID symptoms.

Presentation Slides


Remarks Presenter
2023 PCORI Annual Meeting Headshot of Don Beyer

Don Beyer

  • US Representative, Virginia's 8th District
Breakout Speaker

Liza Fisher, MBA, RYT® 200

  • Cofounder, BIPOC Equity Agency Board/Executive Committee Member, Dysautonomia International & Long Covid Alliance
Breakout Speaker

Sara Santarossa, Ph.D.

  • Research Scientist, Department of Public Health Sciences, Henry Ford Health Scientific Director, Patient Engaged Research Center (PERC), Henry Ford Health
Breakout Speaker

Sarah Schenck, M.D., FACP

  • Medical Director, Virtualist Medicine, ChristianaCare
Breakout Speaker

Jonathan Treadwell, Ph.D.

  • Director of the ECRI-Penn Evidence-based Practice Center, ECRI
Breakout Speaker
2023 PCORI Annual Meeting Headshot of Jesse Wagner

Jesse Wagner, M.A.

  • Research Analyst, Evidence Contracts and Consulting, ECRI