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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Year Awarded Year Awarded The year that funding for the project was approved, or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 25 of 49 results

Project Title
Project Status
Project Type

Building capacity to include people with IDD in health-related research

Arizona Board of Regents on behalf of the University of Arizona
| Arizona
Yumi Shirai, MA, MS, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Implementing the Infusion Clinic Model in Sickle Cell Disease

Johns Hopkins School of Medicine
| Maryland
Sophie Lanzkron, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)

Data Science Capacity for Conducting PCOR in Autism and IDD (Ds-PCOR-Aut/IDD)

American College of Medical Genetics and Genomics
| Maryland
Zohreh Talebizadeh, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Healthcare Communication to Optimize Functional Outcomes for Youth with Intellectual and Developmental Disabilities

Hugo W. Moser Research Institute Kennedy Krieger
| Maryland
Alison Pritchard, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Building Capacity for Long-Term Care Stakeholders in COVID-Related PCOR/CER

Institute for Patient- and Family-Centered Care
| Maryland
Beverley H. Johnson, BSN, FAAN
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Learning from Experience: Exploring the Impact of Approaches to Family Presence in Hospitals During COVID-19

Institute for Patient- and Family-Centered Care
| Maryland
Deborah Dokken, MPA
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Building Capacity to Reduce COVID-19 Long Term Effects on Survivors

Johns Hopkins University
| Maryland
Hanan Aboumatar, BS, MD, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Engaging Older Adults and Caregivers in Medication Optimization Research

University of Maryland, Baltimore
| Maryland
Nicole Brandt, PHARMD,MBA
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Midwest Patient-Centered Autism Research Consortium (MARC)

American College of Medical Genetics and Genomics
| Maryland
Zohreh Talebizadeh, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

COmmunity Based Development of CollaboRatIVE and Sustainable PartNerships in PCOR/CER- (CO-DRIVEN)

University of Maryland, Baltimore
| Maryland
Michelle Medeiros, MA, MS
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Engaging Underserved Urban Communities in Research: Addressing Challenges in the Context of COVID-19

Institute for Patient and Family Centered Care
| Maryland
Marie Abraham, MA
Project Status:
Completed; With Final Summary Report
Project Type:
Engagement Award Project

Addressing the Digital Divide to Improve Patient-Centered Outcomes Research (ADD2PCOR)

Johns Hopkins University School of Nursing
| Maryland
Kelly Gleason, PhD, RN
Project Status:
Completed
Project Type:
Engagement Award Project
Project Status:
Completed; With Final Summary Report
Project Type:
Engagement Award Project
Project Status:
Completed; With Final Summary Report
Project Type:
Engagement Award Project

Expanding Access to the Infusion Center Model for People Living with SCD

Johns Hopkins School of Medicine
| Maryland
Sophie Lanzkron, MD, MHS
Project Status:
Awarded; In progress
Project Type:
Dissemination Project
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Stakeholder Alliance for Children with Robin Sequence (StARS): Building Capacity for PCOR

University of Arizona College of Medicine
| Arizona
Jonathan Skirko, MD, MPA, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Capacity Building for a Learning PCOR System

University of Maryland Baltimore
| Maryland
C. Daniel Mullins, PhD
Project Status:
Completed
Project Type:
Engagement Award Project

Schooling after Childhood Cancer: Disseminating the Evidence to Improve Outcomes

Johns Hopkins School of Medicine
| Maryland
Kathy Ruble, PhD, CRNP
Project Status:
Awarded; In progress
Project Type:
Dissemination Project

Building Equitable Dissemination Channels for Patient-Centered Outcomes Research

Johns Hopkins Bloomberg School of Public Health
| Maryland
Janice Bowie, PhD, MPH
Project Status:
Completed
Project Type:
Dissemination Project
Project Status:
Completed
Project Type:
Engagement Award Project

Expanding a Program That Trains Peers to Support Patients with Sleep Apnea

University of Arizona
| Arizona
Sairam Parthasarathy, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)

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