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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Year Awarded Year Awarded The year that funding for the project was approved, or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 25 of 33 results

Project Title
Project Status
Project Type

Youth and Family Behavioral Health Service Priorities: Identifying Outcomes that “Matter”

Family-Run Executive Director Leadership Association (FREDLA)
| Maryland
Millie Sweeney, MS
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference

Implementing the Infusion Clinic Model in Sickle Cell Disease

Johns Hopkins School of Medicine
| Maryland
Sophie Lanzkron, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)

Communicating Late-Effects of Cancer: The State of the Science and Establishing Research Priorities

Hugo W. Moser Research Institute Kennedy Krieger
| Maryland
Lisa Jacobson, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference

Prioritization of CER/PCOR on Prostate Cancer Active Surveillance: Community Consensus Initiative

University of Maryland Baltimore
| Maryland
Mohummad Siddiqui, MD
Project Status:
Completed
Project Type:
Engagement Award Conference

#IDatHome: A Virtual Conference for Infectious Diseases-Focused Patient-Centered Outcomes Research

University of Maryland, Baltimore
| Maryland
Joey Mattingly, PhrmD, PhD, MBA
Project Status:
Completed
Project Type:
Engagement Award Conference

Amplifying the Peer Voice in Behavioral Health Research to Drive Transformation

Institute for Patient- and Family-Centered Care
| Maryland
Pam Dardess, MPH
Project Status:
Completed
Project Type:
Engagement Award Conference
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)

Promoting Implementation of Patient Engagement (PIPE)

Bladder Cancer Advocacy Network
| Maryland
Angela Smith, MD, MS
Project Status:
Completed
Project Type:
Engagement Award Conference

Expanding a Program That Trains Peers to Support Patients with Sleep Apnea

University of Arizona
| Arizona
Sairam Parthasarathy, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)

PCOR/CER Conferences for Engaging Key Stakeholders in Metastatic Cancer Research and Treatment

METAvivor Research and Support Inc.^
| Maryland
Sonya Negley, BA
Project Status:
Completed
Project Type:
Engagement Award Conference

Series of Workshops on CER Methods for Time-varying Treatments

Medical Technology & Practice Patterns Institute, Inc.
| Maryland
Yi Zhang, PhD, DDS, MS
Project Status:
Completed
Project Type:
Engagement Award Conference

Cholangiocarcinoma Foundation 6th Annual Conference

Cholangiocarcinoma Foundation
| Utah
Donna Mayer, BA
Project Status:
Completed
Project Type:
Engagement Award Conference

Translating Comparative Effectiveness Research Using the GRADE Approach (2018)

American Urological Association
| Maryland
Heddy Hubbard, PhD, MPH, RN, FAAN
Project Status:
Completed
Project Type:
Engagement Award Conference

ESRD Anemia Research Priorities: Perspectives from Dialysis Patients and Stakeholders

Medical Technology & Practice Patterns Institute, Inc.
| Maryland
Dennis Cotter, MS
Project Status:
Completed
Project Type:
Engagement Award Conference

Creating Caregiver Provider Partnerships (CCPP)

HealthInsight
| Utah
Christie North, MBA
Project Status:
Completed
Project Type:
Engagement Award Conference

Cholangiocarcinoma Foundation: 2018 Annual Conference

Cholangiocarcinoma Foundation
| Utah
Donna Mayer, BA
Project Status:
Completed
Project Type:
Engagement Award Conference

Annual Cholangiocarcinoma Foundation Conference

The Cholangiocarcinoma Foundation
| Utah
Donna Mayer, BA
Project Status:
Completed
Project Type:
Engagement Award Conference

Surviving Cancer, Thriving in Life

Hugo W. Moser Research Institute Kennedy Krieger
| Maryland
Lisa Jacobson, PhD
Project Status:
Completed
Project Type:
Engagement Award Conference
Project Status:
Completed; With Final Summary Report
Project Type:
Engagement Award Conference
Project Status:
Completed
Project Type:
Engagement Award Conference

2017 CUE Summit: Leveraging the Power of Patient & Consumer Advocacy to Transform Healthcare

Johns Hopkins Bloomberg School of Public Health
| Maryland
Kay Dickersin, PhD, MA
Project Status:
Completed
Project Type:
Engagement Award Conference

Dissemination and Implementation of Causal Inference Methods through Partnerships with Large Health Systems

Medical Technology and Practice Patterns Institute
| Maryland
Yi Zhang, PhD, MS
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)

Adapting a Blood Clot Prevention Program for Routine Use in Hospitals

Johns Hopkins University
| Maryland
Elliott Haut, MD, PhD
Project Status:
Completed
Project Type:
Implementation Project (Limited Competition D&I PFA)

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