Explore Our Portfolio
Displaying 1 - 25 of 116 results
Project Title
Project Status
Project Type
Feeding Matters PFD PCOR Consortium: Building Capacity for Pediatric Feeding Disorder Research
Feeding Matters
| Arizona
Jaclyn Pederson
Project Status:
Awarded; In progress
Project Type:
Engagement in Research, Engagement Award Project
Optimizing Health Outcomes for Individuals with IDD with co-occurring Severe Problem Behavior
Utah State University
| Utah
Katherine Brown, Ph.D.
Project Status:
Awarded; In progress
Project Type:
Engagement in Research, Engagement Award Project
COmmunity-Based Collaboration to Address the Mental Health PILLAR in PCOR/CER Research (CO-PILLAR)
PATIENTS Program, University of Maryland
| Maryland
Michelle Medeiros, M.A., M.S.
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Confronting the Overdose Epidemic by Engaging Patients to Improve Medical Toxicology Research
American College of Medical Toxicology
| Arizona
Rachel Culbreth, MPH, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement in Research, Engagement Award Conference
Disseminating New Evidence to Prevent Blood Clots in Patients with Bone Fractures
University of Maryland Baltimore
| Maryland
Nathan O'Hara, PhD, MHA
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)
Dissemination Initiative Targeting School Nurses and the Children they Serve
National Association of School Nurses
| Maryland
Deborah D’Souza Vazirani, DrPH, MHSA
Project Status:
Awarded; In progress
Project Type:
Engagement in Research, Engagement Award Project, Dissemination Initiative
Project ENGAGE: Training TTSs on use of a Patient Decision Aid on Lung Cancer Screening
North American Quitline Consortium
| Arizona
Michelle Lynch
Project Status:
Awarded; In progress
Project Type:
Engagement in Research, Engagement Award Project, Dissemination Initiative
LIDERES Institute: Leaders in Designing Equitable Research Engagement through Servingness
Arizona Board of Regents on behalf of the University of Arizona
| Arizona
Aileen Wong, AuD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference, Engagement in Research
Building capacity to include people with IDD in health-related research
Arizona Board of Regents on behalf of the University of Arizona
| Arizona
Yumi Shirai, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Youth and Family Behavioral Health Service Priorities: Identifying Outcomes that “Matter”
Family-Run Executive Director Leadership Association (FREDLA)
| Maryland
Millie Sweeney, MS
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference
SHining the SpOtlight Wide (SHOW): Advancing Dissemination Strategies through Continuous Engagement
University of Maryland Baltimore
| Maryland
Hillary Edwards, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference
Supporting Pain Management for Sickle Cell Disease Crisis at Infusion Centers
Johns Hopkins School of Medicine
| Maryland
Sophie Lanzkron, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)
Data Science Capacity for Conducting PCOR in Autism and IDD (Ds-PCOR-Aut/IDD)
American College of Medical Genetics and Genomics
| Maryland
Zohreh Talebizadeh, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Engaging Burn Survivors, their Families, & the Burn Community in Patient-Centered Outcomes Research
University of Utah
| Utah
Callie Thompson, MD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Healthcare Communication to Optimize Functional Outcomes for Youth with Intellectual and Developmental Disabilities
Hugo W. Moser Research Institute Kennedy Krieger
| Maryland
Alison Pritchard, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Communicating Late-Effects of Cancer: The State of the Science and Establishing Research Priorities
Hugo W. Moser Research Institute Kennedy Krieger
| Maryland
Lisa Jacobson, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference
Building Capacity to Reduce COVID-19 Long Term Effects on Survivors
Johns Hopkins University
| Maryland
Hanan Aboumatar, BS, MD, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Preparing Adults with Osteogenesis Imperfecta to Engage in Research on Access and Quality of Care for Their Rare Disease
Osteogenesis Imperfecta Foundation
| Maryland
Tracy Hart, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Leveraging Virtual Communication to Advance PCOR Adoption by the Rare Bone Disease Community
Osteogenesis Imperfecta Foundation
| Maryland
Tracy Hart, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference
Engaging Older Adults and Caregivers in Medication Optimization Research
University of Maryland, Baltimore
| Maryland
Nicole Brandt, PHARMD,MBA
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Midwest Patient-Centered Autism Research Consortium (MARC)
American College of Medical Genetics and Genomics
| Maryland
Zohreh Talebizadeh, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Prioritization of CER/PCOR on Prostate Cancer Active Surveillance: Community Consensus Initiative
University of Maryland Baltimore
| Maryland
Mohummad Siddiqui, MD
Project Status:
Completed
Project Type:
Engagement Award Conference
COmmunity Based Development of CollaboRatIVE and Sustainable PartNerships in PCOR/CER- (CO-DRIVEN)
University of Maryland, Baltimore
| Maryland
Michelle Medeiros, MA, MS
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
#IDatHome: A Virtual Conference for Infectious Diseases-Focused Patient-Centered Outcomes Research
University of Maryland, Baltimore
| Maryland
Joey Mattingly, PhrmD, PhD, MBA
Project Status:
Completed
Project Type:
Engagement Award Conference
Engaging Underserved Urban Communities in Research: Addressing Challenges in the Context of COVID-19
Institute for Patient and Family Centered Care
| Maryland
Marie Abraham, MA
Project Status:
Completed; With Final Summary Report
Project Type:
Engagement Award Project