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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Year Awarded Year Awarded The year that funding for the project was approved, or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 25 of 167 results

Project Title
Project Status
Project Type

Building capacity to include people with IDD in health-related research

Arizona Board of Regents on behalf of the University of Arizona
| Arizona
Yumi Shirai, MA, MS, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Youth and Family Behavioral Health Service Priorities: Identifying Outcomes that “Matter”

Family-Run Executive Director Leadership Association (FREDLA)
| Maryland
Millie Sweeney, MS
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference

Implementing the Infusion Clinic Model in Sickle Cell Disease

Johns Hopkins School of Medicine
| Maryland
Sophie Lanzkron, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)

Data Science Capacity for Conducting PCOR in Autism and IDD (Ds-PCOR-Aut/IDD)

American College of Medical Genetics and Genomics
| Maryland
Zohreh Talebizadeh, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Charting the Course for Patient-Centered Research to Address Inequities in Perinatal Mental Health & Maternal Mortality

The Research Foundation for The State University of New York
| New York
Thomas I. Mackie, PhD, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Healthcare Communication to Optimize Functional Outcomes for Youth with Intellectual and Developmental Disabilities

Hugo W. Moser Research Institute Kennedy Krieger
| Maryland
Alison Pritchard, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Communicating Late-Effects of Cancer: The State of the Science and Establishing Research Priorities

Hugo W. Moser Research Institute Kennedy Krieger
| Maryland
Lisa Jacobson, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Building Research Capacity: Engaging Underserved and Racial Minorities for Improved Mental Health During and After COVID

Research Foundation for SUNY on behalf of the University of Buffalo
| New York
Yu-Ping Chang, PhD, RN
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Building Capacity for Long-Term Care Stakeholders in COVID-Related PCOR/CER

Institute for Patient- and Family-Centered Care
| Maryland
Beverley H. Johnson, BSN, FAAN
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Learning from Experience: Exploring the Impact of Approaches to Family Presence in Hospitals During COVID-19

Institute for Patient- and Family-Centered Care
| Maryland
Deborah Dokken, MPA
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Shifting to Telehealth for Behavioral Health Treatment During the COVID-19 Pandemic: Building Research Capacity

Finger Lakes Area Counseling & Recovery Agency
| New York
Danielle Tilden, BS
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Building Capacity to Reduce COVID-19 Long Term Effects on Survivors

Johns Hopkins University
| Maryland
Hanan Aboumatar, BS, MD, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference

Engaging Older Adults and Caregivers in Medication Optimization Research

University of Maryland, Baltimore
| Maryland
Nicole Brandt, PHARMD,MBA
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Vaccine Uptake Research in Autoimmune Disease: Multistakeholder Planning

Global Healthy Living Foundation
| New York
Shilpa Venkatachalam, MA, MPH, PHD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference

Midwest Patient-Centered Autism Research Consortium (MARC)

American College of Medical Genetics and Genomics
| Maryland
Zohreh Talebizadeh, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

Prioritization of CER/PCOR on Prostate Cancer Active Surveillance: Community Consensus Initiative

University of Maryland Baltimore
| Maryland
Mohummad Siddiqui, MD
Project Status:
Completed
Project Type:
Engagement Award Conference

COmmunity Based Development of CollaboRatIVE and Sustainable PartNerships in PCOR/CER- (CO-DRIVEN)

University of Maryland, Baltimore
| Maryland
Michelle Medeiros, MA, MS
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project

#IDatHome: A Virtual Conference for Infectious Diseases-Focused Patient-Centered Outcomes Research

University of Maryland, Baltimore
| Maryland
Joey Mattingly, PhrmD, PhD, MBA
Project Status:
Completed
Project Type:
Engagement Award Conference

Engaging Underserved Urban Communities in Research: Addressing Challenges in the Context of COVID-19

Institute for Patient and Family Centered Care
| Maryland
Marie Abraham, MA
Project Status:
Completed; With Final Summary Report
Project Type:
Engagement Award Project

Addressing the Digital Divide to Improve Patient-Centered Outcomes Research (ADD2PCOR)

Johns Hopkins University School of Nursing
| Maryland
Kelly Gleason, PhD, RN
Project Status:
Completed
Project Type:
Engagement Award Project

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