Explore Our Portfolio
| Search a repository of PCORI-funded comparative clinical effectiveness research (CER) studies, as well as projects that seek to encourage engagement in research, disseminate and implement PCORI-funded research findings, and improve the nation's capacity to conduct patient-centered CER, among others. Learn more about the Portfolio |
Displaying 1 - 20 of 20 results
Project Title
Project Status
Project Type
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure, PCORnet®: Clinical Research Network (Phase 3)
Supporting Families' Treatment Decisions with Evidence on Treatment of Urea Cycle Disorders
Children's National Health System
| District of Columbia
Nicholas Ah Mew, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Dissemination Project (Limited Competition D&I PFA)
Engagement Coordinating Center for PCORnet
AcademyHealth
| District of Columbia
Elizabeth Cope, PhD, MPH
Project Status:
Completed
Project Type:
Research Infrastructure
OneFlorida Clinical Research Consortium Clinical Research Network
University of Florida - UFHealth
| Florida
Betsy Shenkman, PhD
Project Status:
Completed
Project Type:
PCORnet®: Clinical Research Network (CRN) 2020
ABOUT Network - Project COGENT (Customizing Consumer GENerated Tools to Engage Researchers)
University of South Florida
| Florida
Rebecca Sutphen, MD
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
Bridging the GAP between Patients/Caregivers and COPD Research - The COPD PPRN BRIDGE Project
COPD Foundation, Inc.
| Florida
Cara Pasquale
Project Status:
Completed
Project Type:
PPRN Limited Competition Award
Has Results
Using PCORnet to Understand PCSK9 Inhibitor Use among Patients at Risk for Heart Disease
University of Florida Board of Trustees
| Florida
Rhonda Cooper-DeHoff, PharmD, MS
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research Infrastructure
Master Infrastructure Funding Contract for Advancement and Sustainability of PCORnet Infrastructure: Support of Infrastructure Projects of People-Centered Research Foundation
People-Centered Research Foundation
| District of Columbia
Donna Cryer
Project Status:
In progress; Recruitment not applicable
Project Type:
Research Infrastructure
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research Infrastructure
PCORnet Coordinating Center Phase II (Genetic Alliance)
Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed
Project Type:
Research Infrastructure
PCORnet Coordinating Center Phase I (Genetic Alliance)
Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed
Project Type:
PCORnet® Coordinating Center Phase II
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Community Engaged Network for All (CENA)
Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
American BRCA Outcomes and Utilization of Testing: A Participant-Powered Research Network
University of South Florida
| Florida
Rebecca Sutphen, MD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Phelan-McDermid Syndrome Data Network (PMS_DN)
Phelan-McDermid Syndrome Foundation
| Florida
Megan O'Boyle, BA
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase II
Phelan-McDermid Syndrome Data Network - Phase I
Phelan-McDermid Syndrome Foundation
| Florida
Megan O'Boyle, BA
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
The COPD Patient-Powered Research Network - Phase I
COPD Foundation, Inc.
| Florida
Richard Mularski, MD, MS
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
Community-Engaged Network for All (CENA) - Phase I
Genetic Alliance, Inc.
| District of Columbia
Sharon Terry, MA
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
American BRCA Outcomes and Utilization of Testing Patient-Powered Research Network (ABOUT Network) - Phase I
University of South Florida
| Florida
Rebecca Sutphen, MD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I
