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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Year Awarded Year Awarded The year that funding for the project was approved, or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 17 of 17 results

Project Title
Project Status
Project Type

Implementing the Infusion Clinic Model in Sickle Cell Disease

Johns Hopkins School of Medicine
| Maryland
Sophie Lanzkron, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)

Coordinating Center: Stakeholder Engagement

VUMC (Vanderbilt University Medical Center)
| Tennessee
Karen Winkfield, MD, PhD
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

The Stakeholders, Technology and Researchers (STAR) Clinical Research Network: Phase 3

Vanderbilt University Medical Center
| Tennessee
Russell Rothman, MD, MPP
Project Status:
Awarded; Contract pending
Project Type:
Research Infrastructure

Expanding the Use of an End-of-Life Care Planning Program for Patients with Kidney Disease

The George Washington University School of Nursing
| Virginia
Dale Lupu, PhD, MPH
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)

The Stakeholders, Technology, and Research Clinical Research Network (STAR CRN)

Vanderbilt University Medical Center
| Tennessee
Russell Rothman, MD, MPP
Project Status:
Awarded; Contract not executed
Project Type:
PCORnet®: Clinical Research Network (CRN) 2020
Has Results

Using PCORnet to Understand Diabetes Medicine Prescribed to Patients

Mid-South CDRN
| Tennessee
Russell Rothman, MD, MPP
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research Infrastructure

Supporting the Next Generation of Learning Health Systems Researchers

Agency for Healthcare Research and Quality
| Maryland
Project Status:
Awarded; In progress
Project Type:
Research Infrastructure

Dissemination and Implementation of Causal Inference Methods through Partnerships with Large Health Systems

Medical Technology and Practice Patterns Institute
| Maryland
Yi Zhang, PhD, MS
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)

Adapting a Blood Clot Prevention Program for Routine Use in Hospitals

Johns Hopkins University
| Maryland
Elliott Haut, MD, PhD
Project Status:
Completed
Project Type:
Implementation Project (Limited Competition D&I PFA)
Has Results

Rare Epilepsy Network

Epilepsy Foundation
| Maryland
Brandy Fureman, PhD^
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

Primary Immunodeficiency Connect (PI CONNECT)

Immune Deficiency Foundation
| Maryland
Kathleen Sullivan, MD, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

Interactive Autism Network

Hugo W. Moser Research Institute Kennedy Krieger
| Maryland
Jessica Law, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase II
Has Results

Mid-South Clinical Data Research Network

Vanderbilt University Medical Center
| Tennessee
Russell Rothman, MD, MPP
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase II

PI Patient Research Connection: PI-CONNECT - Phase I

Immune Deficiency Foundation
| Maryland
Kathleen Sullivan, MD, PhD
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

Rare Epilepsy Network (REN) - Phase I

Epilepsy Foundation
| Maryland
Janice M. Buelow, PhD, RN
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Patient Powered Research Networks (PPRN) Phase I

The Mid-South Clinical Data Research Network - Phase I

Vanderbilt University Medical Center
| Tennessee
Russell Rothman, MD, MPP
Project Status:
PCORnet: Phase I completed; Phase II in progress
Project Type:
PCORnet®: Clinical Data Research Networks (CDRN) Phase I

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