Explore Our Portfolio
Displaying 1 - 23 of 23 results
Project Title
Project Status
Project Type
Optimizing Health Outcomes for Individuals with IDD with co-occurring Severe Problem Behavior
Utah State University
| Utah
Katherine Brown, Ph.D.
Project Status:
Awarded; In progress
Project Type:
Engagement in Research, Engagement Award Project
COmmunity-Based Collaboration to Address the Mental Health PILLAR in PCOR/CER Research (CO-PILLAR)
PATIENTS Program, University of Maryland
| Maryland
Michelle Medeiros, M.A., M.S.
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Disseminating New Evidence to Prevent Blood Clots in Patients with Bone Fractures
University of Maryland Baltimore
| Maryland
Nathan O'Hara, PhD, MHA
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)
Addressing Barriers to Engaging Patient & Caregivers Experiencing Critical Illness to Build Capacity for PCOR
Vanderbilt University
| Tennessee
Ruth Kleinpell, Ph.D., RN
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Impact of Food Insecurity on Maternal and Child Health
University of Tennessee Health Sciences Center College of Nursing
| Tennessee
Sarah Rhoads, PhD, RN, DNP
Project Status:
Awarded; In progress
Project Type:
Engagement in Research, Engagement Award Conference
Dissemination Initiative Targeting School Nurses and the Children they Serve
National Association of School Nurses
| Maryland
Deborah D’Souza Vazirani, DrPH, MHSA
Project Status:
Awarded; In progress
Project Type:
Engagement in Research, Engagement Award Project, Dissemination Initiative
Youth and Family Behavioral Health Service Priorities: Identifying Outcomes that “Matter”
Family-Run Executive Director Leadership Association (FREDLA)
| Maryland
Millie Sweeney, MS
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference
SHining the SpOtlight Wide (SHOW): Advancing Dissemination Strategies through Continuous Engagement
University of Maryland Baltimore
| Maryland
Hillary Edwards, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference
Supporting Pain Management for Sickle Cell Disease Crisis at Infusion Centers
Johns Hopkins School of Medicine
| Maryland
Sophie Lanzkron, MD
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)
Data Science Capacity for Conducting PCOR in Autism and IDD (Ds-PCOR-Aut/IDD)
American College of Medical Genetics and Genomics
| Maryland
Zohreh Talebizadeh, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Engaging Burn Survivors, their Families, & the Burn Community in Patient-Centered Outcomes Research
University of Utah
| Utah
Callie Thompson, MD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Healthcare Communication to Optimize Functional Outcomes for Youth with Intellectual and Developmental Disabilities
Hugo W. Moser Research Institute Kennedy Krieger
| Maryland
Alison Pritchard, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Communicating Late-Effects of Cancer: The State of the Science and Establishing Research Priorities
Hugo W. Moser Research Institute Kennedy Krieger
| Maryland
Lisa Jacobson, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference
Building Capacity to Reduce COVID-19 Long Term Effects on Survivors
Johns Hopkins University
| Maryland
Hanan Aboumatar, BS, MD, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Preparing Adults with Osteogenesis Imperfecta to Engage in Research on Access and Quality of Care for Their Rare Disease
Osteogenesis Imperfecta Foundation
| Maryland
Tracy Hart, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Harnessing the Project ECHO Framework to Build Capacity for Patient-Centered Outcomes Research in IDD
Vanderbilt University Medical Center
| Tennessee
Beth Malow, MD, MS
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Leveraging Virtual Communication to Advance PCOR Adoption by the Rare Bone Disease Community
Osteogenesis Imperfecta Foundation
| Maryland
Tracy Hart, MPH
Project Status:
Awarded; In progress
Project Type:
Engagement Award Conference
Engaging Older Adults and Caregivers in Medication Optimization Research
University of Maryland, Baltimore
| Maryland
Nicole Brandt, PHARMD,MBA
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Midwest Patient-Centered Autism Research Consortium (MARC)
American College of Medical Genetics and Genomics
| Maryland
Zohreh Talebizadeh, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Capacity Building to Create a Patient-Centered Research Dissemination Model
Vanderbilt University
| Tennessee
Velma McBride Murry, PhD
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Uptake of a Self-Care Program for Patients with Acute Heart Failure After Discharge from the Emergency Department
Vanderbilt University Medical Center
| Tennessee
Sean P. Collins, MD, MSc
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Limited Competition D&I PFA)
COmmunity Based Development of CollaboRatIVE and Sustainable PartNerships in PCOR/CER- (CO-DRIVEN)
University of Maryland, Baltimore
| Maryland
Michelle Medeiros, MA, MS
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project
Expanding Access to the Infusion Center Model for People Living with SCD
Johns Hopkins School of Medicine
| Maryland
Sophie Lanzkron, MD, MHS
Project Status:
Awarded; In progress
Project Type:
Engagement Award Project, Dissemination Project