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Health Condition Health Conditions These are the broad terms we use to categorize our funded research studies; specific diseases or conditions are included within the appropriate larger category. Note: not all of our funded projects focus on a single disease or condition; some touch on multiple diseases or conditions, research methods, or broader health system interventions. Such projects won’t be listed by a primary disease/condition and so won’t appear if you use this filter tool to find them. View Glossary
Year Awarded Year Awarded The year the PCORI Board of Governors approved funding for the project or the year the proposal received a notice of award. View Glossary
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Displaying 1 - 25 of 127 results

Project Title
Project Status
Project Type

Supporting Ongoing Use of Two Conversation Aids for Making Decisions about Early-Stage Breast Cancer Treatment -- The SHAIR Collaborative

Trustees of Dartmouth College
| New Hampshire
Glyn Elwyn, MD, PhD, MSc
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)

Multi-stakeholder Engagement for Enabling Patient-Driven Research

Accelerated Cure Project for Multiple Sclerosis
| Massachusetts
Robert McBurney, BSc, PhD
Project Status:
Project Type:
PPRN Limited Competition Award

ABOUT Network - Project COGENT (Customizing Consumer GENerated Tools to Engage Researchers)

University of South Florida
| Florida
Rebecca Sutphen, MD
Project Status:
Project Type:
PPRN Limited Competition Award

An Open-Source Crowdsourcing Platform for Community-Engaged Research and Dissemination

Board of Trustees of the Leland Stanford Junior University
| California
Mitchell R. Lunn, MD, MAS
Project Status:
Project Type:
PPRN Limited Competition Award

Diversifying, Expanding and Tracking Patient Engagement in Arthritis Research

Global Healthy Living Foundation
| New York
William B. Nowell, PhD, MSW
Project Status:
Project Type:
PPRN Limited Competition Award

Coproducing Learning Health System Culture and Process to Accelerate PCOR in the ImproveCareNow Network

Cincinnati Children's Hospital Medical Center
| Ohio
Peter Margolis, MD, PhD
Project Status:
Project Type:
PPRN Limited Competition Award

Enhancing Engagement, Research Participation, & Collaboration through the IBD Partners Patient Powered Research Network

Crohn's & Colitis Foundation, Inc.
| New York
Angela Dobes, MPH
Project Status:
Project Type:
PPRN Limited Competition Award

PARTNERS - Enabling Real-time, Personalized Engagement in Research: An App-based Approach

Boston Children's Hospital
| Massachusetts
Marc Natter, MD
Project Status:
Project Type:
PPRN Limited Competition Award

Bridging the GAP between Patients/Caregivers and COPD Research - The COPD PPRN BRIDGE Project

COPD Foundation, Inc.
| Florida
Cara Pasquale
Project Status:
Project Type:
PPRN Limited Competition Award

Putting a Diabetes Risk Prediction Tool into Practice to Support Shared Clinical Decision Making

The Regents of the University of California, Los Angeles
| California
O. Kenrik Duru, MD, MS
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)

Shared Decision Making for Weight Loss Surgery in Patients with Severe Obesity

Kaiser Foundation Health Plan of Washington
| Washington
David Arterburn, MD, MPH
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)

Improving Shared Decision Making for Men with Prostate Cancer That Has Not Spread

Regents of the University of California, Los Angeles
| California
Christopher Saigal, MD, MPH
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)

Expanding Use of a Decision Aid to Help People with Lupus Nephritis Make Decisions about Treatment

University of Alabama at Birmingham
| Alabama
Jasvinder Singh, MD, MPH
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)

Using a Decision Aid to Help Patients Make Decisions about Fibroid Treatment

Trustees of Dartmouth College
| New Hampshire
Glyn Elwyn, MD, PhD, FRCGP, MSc, MB BCh
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)

Expanding a Shared Decision Making Program for Patients Considering LVAD Treatment

University of Colorado Denver
| Colorado
Daniel D. Matlock, MD, MPH
Project Status:
In progress; Recruitment not applicable
Project Type:
Implementation Project (Implementation of Effective Shared Decision Making Approaches PFA)

Advancing Reproductive Health Wellness Between Patients with Cystic Fibrosis, Their Caregivers, Healthcare Providers and Researchers - Tier II

University of Washington Department of Family Medicine
| Washington
Emily M. Godfrey MD, MPH, FAAFP
Project Status:
Project Type:
Tier II

Building a Collaborative Partnership with Super-Utilizing Female Patients with Multiple Chronic Conditions Including Mental Illness and Substance Use - Tier II

Denver Health and Hospital Authority
| Colorado
Debbie Rinehart, PhD, MA
Project Status:
Project Type:
Tier II

Community Engagement to Improve Prevention and Treatment of Congenital Cytomegalovirus Infection - Tier II

University of Massachusetts Medical School
| Massachusetts
Laura Gibson, MD
Project Status:
Project Type:
Tier II

Engaging Cancer Survivors in the Community for Assessing Nutritional Needs and Barriers - Tier II

Tufts University, Friedman School of Nutrition Science and Policy
| Massachusetts
Fang Fang Zhang, MD, PhD
Project Status:
Project Type:
Tier II

Refugee-Centered Medical Home-PCMH Working Better for Our Newest Neighbors - Tier II

Wright State University
| Ohio
Kate Conway MD, MPH
Project Status:
Project Type:
Tier II

Transforming the Gift of Life into a Transplant Living Community (TLC) - Tier II

Henry Ford Health System Transplant Institute
| Michigan
Kelly Collins, MD
Project Status:
Project Type:
Tier II

Building a Patient-Centered Care Network for MRKH - Tier II

Beautiful You MRKH Foundation, Inc.
| Maryland
Amy C. Lossie, PhD
Project Status:
Project Type:
Tier II

Developing Comparative Effectiveness Research in Dravet Syndrome - Tier II

Dravet Syndrome Foundation
| Connecticut
Mary Anne Meskis
Project Status:
Project Type:
Tier II

Creating a Patient-Built, Patient-Directed, Patient-Centered Research Community for Chronic Pain - Tier II

National Fibromyalgia and Chronic Pain Association
| Virginia
Barbara L. Kornblau
Project Status:
Project Type:
Tier II

Developing a Health Services Research Agenda for the Twin Cities Consortium for Alzheimer's Research (T-CAR) - Tier II

Regents of the University of Minnesota
| Minnesota
Patricia Carlson, MPH
Project Status:
Project Type:
Tier II

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