Explore Our Portfolio
Displaying 1 - 9 of 9 results
Project Title
Project Status
Project Type
Has Results
Comparing Two Ways to Help Patients with Sickle Cell Disease Manage Pain -- The CaRISMA Study
University of Pittsburgh
| Pennsylvania
Charles Jonassaint, PhD, MHS
Project Status:
In progress; Data collected
Project Type:
Research, Research Conducted Using PCORnet®
Community Health Worker and Mobile Health Programs to Help Young Adults with Sickle Cell Disease Transition to Using Adult Healthcare Services -- The COMETS Study
The Childrens' Hospital of Philadelphia
| Pennsylvania
Tanisha Belton, DrPh, MPH
Project Status:
In progress; Enrollment complete
Project Type:
Research
Comparing Transitional Care for Teens and Young Adults with Sickle Cell Disease with and without Peer Mentoring
Carolinas Medical Center
| North Carolina
Payal Desai
Project Status:
In PCORI Peer-Review Process
Project Type:
Research
Has Results
Comparing Ways to Help Parents of Children with Sickle Cell Disease Decide on Treatment -- The ENGAGE HU Study
Cincinnati Children's Hospital Medical Center
| Ohio
Lori E. Crosby, PsyD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research
Has Results
Comparing Surgery with and without Duraplasty for Youth with Chiari Malformation Type I and Syringomyelia
Washington University School of Medicine
| Missouri
David Limbrick, MD, MS, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts Posted
Project Type:
Research
Has Results
Self-Management of Urinary Symptoms Using a Probiotic in People with Spinal Cord Injuries, Spina Bifida, and Multiple Sclerosis
MedStar Health Research Institute
| Maryland
Suzanne Groah, MD, MPH
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Using an Online Program to Increase Patients' Confidence in Managing Scleroderma
University of New Mexico Health Sciences Center
| New Mexico
Janet L. Poole, PhD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
Evaluating the Impact of a User-Friendly Report of Genetic Testing Results for Parents of Children with Genetic Disorders
Weis Center For Research-Geisinger Clinic
| Pennsylvania
Marc S. Williams, MD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research
Has Results
An Online Decision Aid to Help Patients and Caregivers Decide on Treatments for Sickle Cell Disease
Emory University^
| Georgia
Lakshmanan Krishnamurti, MD
Project Status:
Completed; PCORI Public and Professional Abstracts, and Final Research Report Posted
Project Type:
Research